Octreoscan
By Margot | September 11, 2008
We did an new scan for us on Tuesday and Wednesday of this week. It’s called an octreoscan and it’s similar to an MIBG scan but it’s over two days and the injection is different. The Tuesday scan was 4-hours post-injection and the Wednesday scan was 24-hours post-injection. It is a much clearer scan than the MIBG scan, you can see uptake very clearly. We don’t have the final read but the left distal femur lights up (as it did on the MIBG) and on the 24 hour but not 4 hour, you could see the spot on Sam’s left arm. His VMA after two weeks in the 7’s, went from 7.8 to 10.2. So the previous two weeks, we were thrilled that it dropped by three points and now we are not so thrilled that it’s jumped by three points. HVA was 10.6 and VMA 10.2. Last week was HVA 9.8, VMA 7.8. We are trying to decide what to do. The MIBG looked good, there was barely uptake in the arm, but on the 24 hour octreotide scan the spot on the arm practially stood up and waved at us, saying “I’m still here, what are you going to do about me?” We are deciding on several different courses of action at this point – possibly radiating the femur alone or radiating both the femur and the arm and a few other options that I will detail should we decide to do them.
Sam on the way to the injection Tuesday for his scan: “Mom, it’s P.E. day. P.E. starts at 1. Can we get back for P.E.?” Me: “I’m not sure buddy, we’ll have to see how quickly we can get accessed, blood check, injection and deaccessed.” Sam “Mom, why did you schedule a scan on P.E. day? Well, it’s a good thing I played a lot at snack recess. You know what I do now? I eat my snack while I’m walking to the playground so I don’t lose any time playing.” You really have to love the priorities. He wasn’t all that worried about missing, say, math. We did make it back for P.E. and Sam finished the school day before his 4:15 scan. Andy and Charlie came with us to the second day scan since it was only a half hour and Andy is usually happy to watch the movie with Sam. Charlie kept saying, “Sam fly in machine?” Sam flying?”
School is going well. Charlie misses the boys and he gives them both a hug and a kiss at their classroom door and says, “When can we pick up my boys, mom?” He’s starting calling them “his boys” -probably because I always refer to them as “the boys.” I plugged his height and weight as a two year-old as well as Neil and my height into a little calculator on Parentcenter.com that calculates how tall your two year-old will be at age 18. Charlie’s result, drumroll please…… Six feet, six inches. I told the Sam and Andy they’d better stop bonking him. Andy tells us all about football at recess. The funny thing about it is that they don’t allow footballs at school so Andy and Jake and the boys play with an imaginary football. So, there is Jake hiking the imaginary football to Andy, who catches it, tucks it under his arm and runs through the defense for the touchdown. I crack up when Andy tells me, “Today, Jake threw a really long pass, and I jumped up, flipped over a guy and caught it for a touchdown. Then I did a flip in the end zone.”
Blood counts are good but may be down again next week. We just started temodar and accutane this week. Sam takes zofran at school for nausea and seemed to be ok yesterday. We have vision therapy and soccer today and a busy weekend which I’m hoping will stave off the dry mouth, heart pounding anxiety that comes with a jump in VMA and two brightly lit spots having waved at us in the recent scan.
We were honored to attend Max’s celebration last weekend. I’m sure you’ve all seen the wonderful pics that Deb took. The Mikulak’s strength and grace as they honored their little boy was amazing.
Margot
Topics: Progress Reports | Comments Off on Octreoscan
First Week of School
By Margot | September 5, 2008
Before you read this post, I have a couple of places to send you today:Â First please click on the following link to see the wonderful Lacey Family and Magic Water on the Boston news:Â http://www.thebostonchannel.com/video/17394176/index.html
Second, Erin Buenger is in the hospital facing five days of continuous chemo and it would be great if you can send her a funny story about Jr. High, per her request on her website: http://www.erinbuenger.blogspot.com/  It’s very easy. Erin is in room 933: http://www.texaschildrens.org/parents/patientgreeting/default.aspx  Thank you.
The boys on their first day of school.
Sam and Andy are loving school this week. Andy jumped right in with no problems. He was so ready to go, Jakey is in his class and was a little scared on the first day and Colleen leaned down to tell Andy that Jake was a little nervous and and Andy put his arm around him and put his hand up and said, “I got him.”  His teacher told me yesterday that she was so happy to have him in class and that he is so helpful.    Anyway, though we may still have some a delayed adjustment coming, so far Andy has breezed right into kindergarten as if he owned the place.
Sam is loving school too. He has Mrs. Abbuhl who he had in kindergarten and really likes her. He was nervous because he only knew a couple of kids in his class. This is the first year in two years that he hasn’t had Joe in his class, he was worried about it but he’s really liking school-so happy to go every day and has met some kids he really likes- the sporty guys of course. He sees Joe at lunch. He got an 80% on his first math test yesterday and tells me everyday the games he plays at recess (As does Andy). Mrs. Abbuhl told me that yesterday they were sitting in a group and she was asking everyone questions about reading. The second question was  “When do you like to read?” Sam’s answer was, “I like to read when my mom tells me to read.”  Nice. His first soccer game is on Saturday and he is very excited. He’s really fun to watch in soccer as he’s getting some serious moves.   After vision therapy yesterday, Sam and I went out to eat at Subway (his pick) and an older man came up and sat right next to us and said, “Can I ask you a question?” I was surprised and thinking, “Oh boy, here it comes” but said “Sure. “  He looked at Sam and said “How does your hearing aid work? I just went down to Mexico, they are cheaper down there, and ordered one and I’m wondering if it actually works.” Sam perked right up and said, “It works great. It really easy and I hear just as well as…. before.” He was so enthusiastic and so nice about it. I sometimes think he really likes to know that other people have to use hearing aids and that it’s not just him.  I told him how nice it was of him to make the man feel better and he said. “Sure. There’s nothing to be nervous about.”
Charlie had his two year check up. He’s right on track with everything except hight. He is off the track (or charts in this case) on hight. Dr. James said to please remember that he’s only two. He’s big kid and it is easy to treat as a three year old. I was thinking that she should be talking to my two older boys with that speech.
We have really hit the ground running this week, scheduling Sam’s blood check, his two soccer practices, Andy’s soccer practice, Charlie’s swimming lessons, and Sam’s vision therapy on top of school and all the new paperwork. I have stuffed all of the hurt and sadness way down into the nether regions of my brain.  My brain, however, is not outsmarted that easily and the thoughts waft up around midnight and/or during the day and hit like a body blow. I have such a hard time believing that Max, who was such a sparkle, a beautiful, enthusiastic, funny, sweet little boy is gone. I’m sad and mad for the Mikulaks who fought so hard and derserve their son, and I’m just sad in general. It’s redundant to state the obvious, cancer sucks and it isn’t fair.
We have not told Sam about Max. This is in no disrespect to Max and how amazing and wonderful he was or to the Mikulaks, who have been so kind and generous and who we would do anything for. We made this decision because Sam is an eight year-old little boy with the exact same disease who, for this week at least, is only worried about how his first soccer game is going to go and what game he is going to play at recess and his new class at school. We want him to live life To the Max and feel he deserves it. I know not everyone will agree with this decision but we hope you will respect it as what we feel is right for Sam and our whole family right now.
I’ll leave you with a smile. We have some new neighbors, very beautiful Brazilian girls. They are very very nice girls. They’ve been hanging out at the pool quite a bit in thong bikinis. It’s like a Ban de Solei commercial around here.  It’s funny to watch how many Dads have decided to barbeque lately ;-) (the community barbeque is looks right out over the pool). Neil came in from the pool last week with a big grin on his face and said, “Guess who’s in the hot tub with the Brazilian girls? Sam and Andy.” I went out to look and there are the two boys, Andy with his arms spread on the edge of the hot tub chatting up the girls.Â
Margot
Topics: Progress Reports | 4 Comments »
Max
By Neil | September 1, 2008
Max’s wonderful laugh was silenced last night. In a galaxy far, far away, there is an angel fighting alongside Luke Skywalker and Princess Leia to make the world safe for everyone. Please keep his family in your thoughts & prayers and visit his site at www.mikulak.org
Neil.
Topics: Progress Reports | 6 Comments »
Scan Looked Good
By Margot | August 29, 2008
We just got back from our 8am scan and it looked good. There is one small spot clearly visible above the left knee. The two spots that were on the right leg are gone and the spot on the arm looked gone (or if it was there it was very faint and we had to strain to see it).  Loreen brought up the May scan for us to compare and there is no question that everything looked better. So we are not clean but we are holdiing steady to improving. These of course are not official results, we’ll have those back in a few days but the comparison of the two scans was clear enough to us that I think we’ll be ok waiting. Relieved but still anxious for some reason – maybe I’m posting too soon after the actual scan and the scan mentality hasn’t worn off yet. Anyway very good news! Let’s hope for a trifecta today - Erin is getting results as is Hans Weberling. Will’s scans yesterday were stable (Wohoo!)
I’m off to take Andrew to kindergarten orientation – must get in my spaceship and zoom back to planet normal. Hope everyone has a great long weekend.
Margot
Topics: Progress Reports | 5 Comments »
Therapy
By Margot | August 26, 2008
Some days I feel like the Annette Benning character in American Beauty when she is chanting to herself “I will sell this house today, I will sell this house today, I will sell this house todayâ€Â as she’s furiously scrubbing the dirty counter tops and sweeping the leaves. I am sometimes gritting my teeth to say “I will remain positive and enjoy every second and help the kids enjoy every second when Sam is feeling good.â€Â As my friend and author, Laurie Ulrich, once told me when I told her that philosophy, “Yeah that’s all well and good, but it’s not very practical, you still have to go to the grocery store and do other errands and deal with real life.â€Â Â
 I just recently remembered a conversation I had long forgotten. When I was first starting out at my job, I was meeting with a computer book author team at a conference. We introduced ourselves and started talking. It came about in the conversation that one of the authors had just lost his two year-old son to a very aggressive cancer. I don’t remember what kind, it could very well have been nb. I was 25 or so at the time, not married and this was completely out of my realm of experience. I think I said how sorry I was to hear it and then probably felt at a loss as to where to go next in the conversation. Somehow we steered back to business and I was explaining the different computer book publishing contracts and what it was like to work with different companies and probably trying to be “in the know†and cool I said “and this company’s contract will want everything including your first born.â€Â  The author said “Well it’s too late for that†and then he and his friend laughed. This brave young father looked at me who was apologizing profusely, completely mortified and wishing the words back into my mouth and he said something like: “You have to laugh or you can’t take it.â€Â  I’ve been thinking that maybe laughter is the best therapy through all of this – that if you don’t laugh you will curl up and never stop crying for all of these kids.
I tried therapy once.  We were in round four of upfront chemo- a particularly toxic combination that was sure to make Sam very sick. Sam was so brave and sweet through all of it, I marvel sometimes at all he endured. We had several relatives in town from different sides of the family. Suffice it to say they weren’t getting along all that well. We had a roommate in our tiny hospital room. He was three and his mother “didn’t sleep well†on the hospital chairs so she left him at about 6pm each night. I felt terrible for the little boy and tried to share toys and food we brought for Sam with him. He liked to chew on his chemo lines and tended to get them tangled and wrapped around things so I spent a lot of time unwrapping his lines from the bed and grabbing them out of his mouth. We were arranging Sam’s Make-a-Wish at the time and before she left one night the little boy’s mother asked me what Sam wanted for his wish. I told her I wasn’t sure what he would ask for. She said, “I told my son to wish his daddy out of jail but they said they don’t grant those kinds of wishes.† Huh. While we were in the hospital my mom decided she wanted to buy us some groceries. My brother-in-law, Matt kindly offered to take her to the grocery store. As they were in the parking lot my mom started fishing through her purse for her sunglasses or something (you never know what my mom will fish out of her purse) and a mouse (swear to God) scurried up out of her purse, onto her arm and jumped off into the parking lot. My mom was very distracted and Matt said to her pointing to the mouse scurrying through the parking lot, “Was that just a mouse that jumped out of your purse?â€Â “What?â€Â my mother said spotting the mouse, “A mouse?â€Â  “Ahhhh!â€Â You have to hear my brother-in-law tell the story but apparently my mom ran screaming into the grocery store yelling at all who would listen about the mouse and the Hanta Virus and the fact that she had a grandson with cancer and she needed to wash her hands. Matt said they got her a token for the bathroom immediately and walked her there. I’m guessing that they didn’t want to hear anything about a mouse and the Hanta Virus anywhere near their grocery store. Anyway, that was the week I decided to try therapy.   At the time I was racing back from the hospital to spend a few hours with Andrew every day so that he knew he was loved and his family hadn’t disappeared. The whole time I was driving to the therapist appointment I was thinking “Why am I wasting this hour when I should be spending it with Andrew?â€Â The therapist was young, younger than I was. She was a tall thin blond girl with the kind straight hair I’d always wanted growing up. I sat down and started out with “My four year old has cancer, a bad cancer.â€Â I went through all the side effects that he would be facing, what our family was going through and ended up with the mouse jumping out of my mother’s purse.  The therapist girl looked like a deer in the headlights –totally out of her depth. Trying to stumble back into familiar territory, she looked at me after I’d finished my long litany of woes and said, “So how is your marriage?â€Â  That was the end of therapy for me. I walked out and never went back. I realized later that the best therapy that week was trying to tell my brother the mouse story but I was laughing so hard I was crying and couldn’t get it out.
The problem with going with the laughter as therapy theory is that some days I can’t find an f-ing thing funny about this disease.
Margot
Â
Topics: Progress Reports | 11 Comments »
Quick Numbers Post
By Margot | August 24, 2008
VMA 7.3 = Normal HVA 10.1=barely high. Hallelujah!
MIBG Scan is Friday of this week. Injection Thursday.
Facts learned by Sam at SeaWorld camp last week.Â
“Did you know that when it’s dark in the water Dolphins find their food by sound?”
“There are two kinds of tall penguins. The king penguin is kind of skinnier and the emperor penguin is kind of fatter like Big Z” (in Surf’s Up)
Andy:
“I sat in the soak zone in the Shamu show and got soooo wet! The fourth row is the most wet row.”
They both came home with great songs from camp and many facts about the manatees. SeaWorld camp was a hit.
We watched Surf’s Up last night at The Movie at the Park Night last night. Sam loves “Chicken Joe” so we’ve been doing Chicken Joe lines this morning.  Sam had me download the soundtrack of the movie to his iPod he got for his birthday (I know I know, an eight year old with an iPod- I justified it because Angela Thomas -angel Christi’s mom- said on her site that she bought one for Shayla because you can download audio books on it but Colleen laughed out loud at me and said “Margot, really you think Sam is going to download audio books?”) Anyway, Sam’s favorite song is “You Get What you Give” by the Free Radicals. I love the lyrics. Here is the link on YouTube: http://www.youtube.com/watch?v=gPb6KCtUKwA&feature=relatedÂ
I’ll do a full post next week. Neil’s out of town for a few days and Charlie’s currently standing on top of my sink.
Please visit the Mikulak’s site and leave some words of support for them: http://www.mikulak.blogspot.com
Margot
Topics: Progress Reports | Comments Off on Quick Numbers Post
SeaWorld Camp This Week/Good News-Bad News
By Margot | August 18, 2008
The boys at the end of tennis camp last week.Left to right: Beau,Andy, Grant,Sam,Mack
Sam and Andy loved tennis camp last week. They came home every day excited about the all of the games they played (Jailbreak, something called Wolf and several others). This week is their second camp of the summer, SeaWorld Camp. Charlie and I dropped them off this morning and Mack and Grant and Beau will be there too so I hope they have fun.
Last week we got good VMA/HVA numbers VMA:7.7 HVA: 11.9. Needless to say we were thrilled. 7.7 is almost normal apparently switching things up a bit helped out. Our ANC got down to 900 last week. We do not want Sam have low white counts and though that’s not that low, it’s the lowest we’ve been in a while.   Sam gets very sick when he has no white counts. He bounces back into the hospital every single time his counts get low. We did it through up front therapy and when he first relapsed-every two weeks on schedule, we’d spend a week to ten days in the hosptial waiting for his counts to come back.  We do not want him to have to go down that road again, especially since we want to stay on low dose long term. It didn’t seem to matter if we keep him home in a bubble or let him go out. We are tyring Israeli honey to keep counts up. Neil discovered it. We’ve heard good things about it and it’s a no brainer (except for the price), since it’s honey.   We got our first little two by two jar a few months ago and the first morning I was going to give it to Sam, I fumbled the little glass jar and it shattered on the floor (it was if I’d just shattered a Tiffany vase).. It’s funny now but not so much at the time. We’d stopped giving it because Sam didn’t like it but since we got the 900 number, we’ve devised a sort of honey popsicle that Sam will eat.
 The other disturbing development last week is that there was blood in Sam’s urine. Usually at the end of the day and at the very end of the urine stream. According to my research on the Internet, the end of the day and the end of the urine stream indicates bladder and urethra, not kidneys. We started hydrating Sam like crazy and it stopped for a couple of days and then it started again. We’ve taken a couple of days off chemo and haven’t seen it. We did a urinalysis which was completely clear. It’s an on again off again thing but obviously something we need to keep on top of.
 In terms of mood and energy, aside from the fact that there has been quite a lot of lip coming from he and his little brother lately, Sam has been in great spirits and came back from tennis camp last week saying that he wished I’d signed him up for the whole day. We’re getting ready for school to start. We’ve been doing practice homework daily to get them ready and Andy has been working on tying his shoes.  Watching Andy nervous at camp today before his friends arrived brought home that his first day of kindergarten is coming up. It’s our family’s first first day of kindergarten, as Sam was in stem cell transplant on his official first day of kindergarten (though he did have his first day finally in March of that year). We let the boys each get new shoes for school this weekend and Sam picked out cool guy DC shoes.  They are black and white with a little red. He asked the sales lady if they come with red laces. I flinched but when she put them in, I must say they looked much better. I don’t know where that kid gets his sense of style - must come from me (I’m sure you would have come to that conclusion had you seen me this morning dropping the kids off at SeaWorld camp ;-)).
Charlie has develped a great fake laugh. He even does the little sigh at the end. All the boys have been Olympics crazed these past couple of weeks. They love to watch diving for some reason (though honestly Sam will watch any sport that’s on even if everyone else thinks it’s a snore). Charlie calls diving “swimming falling.” Though we’ve tried to tell Andy who our team is, he roots for whoever is ahead, which in diving tends to be the Chinese.
There are some exciting things coming up in NB research lately. I happen to live with an amazing man who has his finger on the pulse and keeps informing me of very promising things.  Dr. Sholler has some exciting things brewing in the lab and clinic. Also,check out this artilce in Science Daily. I’m always amazed at how many treatment leaps are made by surgeons: http://www.sciencedaily.com/releases/2008/08/080815200208.htm
MargotÂ
Â
Topics: Progress Reports | 2 Comments »
Happy Birthday Charlie!
By Margot | August 11, 2008
Charlie is two today! He had fun at his party yesterday and will open his family presents tonight when Neil gets home from work. A few quotes from our little boy might give you some insight into his personality:
“Mom, what doin’?”
“I’m folding laundry Charlie, what are you doing?”Â
 “I’m doin’ whoa! Watz this!” -launches self down steps two at at time while exclaiming, “Whoa!”
“Sim (Sam), Annie (Andy) Wan play tackle?” launches self at Sam and/or Andy laughing saying “Tackled!”
“Where my ten racket?” Asking for his tennis racket so he has one while we drop off his brothers at camp.
Sam to me, “Mom, look at what I taught Charlie.” “Ready Charlie?” Sam and Charlie both sit down on their skateboards with legs out front, put their arms around each other and go down our little driveway hill, saying, “Whoa!” while connected all the way down.
I can’t believe he’s already two and he can’t believe he’s only two. He brings joy wherever he goes and has certainly brought joy for the past two years to every member of our family. Happy Birthday Mr. Baby! (Andy’s nickname for him).
Sam and Andy started tennis camp today and loved it. Sam met some new friends in his group and Andy had Beau and Grant in his group. The three amigos were very happy to be reunited at camp. I was a little worried for Sam because he didn’t know anyone in his age group but had said he wanted to go. When I picked him up, he had a big smile on his face and was playing tag. They have camp all week this week from 9:30 to 12:30 (don’t tell our orthopedist-Sam’s ankles are fine by the way). Sam has a blood check tomorrow and vision therapy at 3 after camp.  We restart chemo this week as well.
Margot
Â
Â
Â
Topics: Progress Reports | 3 Comments »
Good Cats
By Margot | August 6, 2008
Â
Boys and Dad at the park after water balloon fight
VMA/HVA last week were 10.6 and 13.9 so HVA is on the way and VMA is holding steady.Â
I dropped the boys off at tennis today and Coach Joe said they are going to grow out of their rackets pretty quickly with “their talent.”  That was really all it took for me to start fantasizing on the way home about having the male version of the Williams sisters growing up in our house-and then I took it further and added Charlie since I can tell he has a great swing. I was thinking of the Sports Illustrated Cover featuring our three boys with the miracle story of Sam and the fact that he overcame cancer to grow up to be the new Roger Federer with his brothers Nadal and Nadal. “Come to think of it,” I thought to myself, “When Andy has his hat on, he looks a little like Jim Courrier.”  I know that you are thinking, “This woman needs a reality check” or “Sports mom gone berserk!” Maybe it was the good numbers yesterday that allowed me to dream big.  But as I was chastising myself for my day dreams, I realized that I live in a reality check all time. So if some people have hero fantisies are about rescuing people from anairplane crash and going on the Today Show, I’ll let myself give in every once in a while to the crazy parent fantasy that we all have. If you are thinking “speak for yourself, you are delusional” then leave me with my delusions for today. I need them sometimes.
We had a good Neil’s birthday weekend with a water ballon fight at the park, bowling (the boys choice for Dad’s birthday) and a bonfire and watching fireworks at the beach Sunday night (Dad’s choice). The boys loved the bonfire, so we will do it again before summer is over.   Sam is still feeling good and active as you can see. Weight is holding steady. AST and ALT are back down (they had been a little high), we are on the off week of chemo and Sam is eating well. Neil as usual has been hunting cancer cells with dedication and determination that never ceases to amaze me.
Charlie boy turns two next Monday (don’t tell him that though). He’s the exact age Andrew was when Sam was diagnosed. Welcome to cancer family milestones.  We’ll have a little pool party for him, he’s becoming more and more of ham, so funny.
More next week when we start to mix things up a bit.
MargotÂ
Â
Â
Topics: Progress Reports | 4 Comments »
What We’ve Been Up To
By Margot | July 31, 2008
Neil and boys at the Nighttime zoo
All of us saying goodbye to John and Sock at the airport
John, Sam and Neil at Paradise Point Hotel
Everyone is doing well. Sam has great energy and has been eating well. His weight has stayed steady at 24.4 kilos (most he’s ever weighed).Â
We had a great time last week at Artie and Jen’s wedding. Congratulations Artie and Jen! Got to see all the old gang (great to see Chris and Diane in town with Christopher and Matt) and it was a beautiful ceremony.  Neil left a little early to pick up Sam’s chemo for Saturday and I stayed until I had to coach basketball. I pulled it off even after a few glasses of wine (really that Enjoli lady has nothing on me - ha ha).  The ref only had to tell me which way we were going twice.
Last Saturday John London and Scott (the boys call him “Sock”) Kennedy came into town and spent a few days. The boys loved both of them and had a great time playing basketball and tackling them and hanging out at their hotel, swimming, feeding the ducks, etc.  It was wonderful for the boys and me to finally get to meet John who has meant so much to Neil and our family throughout the past two years.  He was just great with the boys.  The beautiful Penelope had a wonderful dad.  The boys knew Scott from the MagicWater meeting earlier in the Spring when they nicknamed him “Sock.” They gravitated right to him when he walked in the door and picked up right where they left off wrestling with him. Scott lost his son Hazen to nb almost two years ago. I know I don’t have to reiterate how unfair and awful and sucky this disease is but there are days when I want to scream it from the rooftops.
We met with Dr. Willert this week about changing up Sam’s chemo. He will do the Irrino/Temodar for the three week schedule we are on and then do a cycle with Temodar, accutane, and three or four other things showing promise with some kids.  The theory is to keep the cancer guessing and not get it too used one thing all the while keeping it low dose. Dr. Willert likes the idea. VMA is at 10 last week (yay) HVA was 18 (wish it were lower). We don’t have this week’s results back yet.
Tuesday we did the nighttime zoo and the big cats were out and about. Charlie is the perfect zoo age and could have stayed at each animal forever.  He talked to an orangutan who came right up to the glass and said “He’s talkin to me, mom and then he put his face right up to the glass.  We went swimming with the Bonebrake boys today and are working on an August vacation and some camps. Stay tuned. Friday is our last basketball game so we’ll get some pics.    The boys are starting to talk about school and Sam asked when we will find out who his teacher will be today. He’s doing really well with vision therapy and it’s amazing to see how much progress he’s made in just five sessions. His eyes don’t jump when he’s focussing on things. I actually never notice they jumped until we started doing the exercises.  He loves vision therapy and he works really hard at it as he does most things.
Neil and I will be married ten years tomorrow and Neil’s birthday is on Saturday.  No big plans as of yet but we may do something spontaneous. Â
More soon.
Margot
Â
 Â
Â
Topics: Progress Reports | 3 Comments »