Progress Reports
« Previous Entries Next Entries »180 Degrees
Saturday, January 9th, 2010Sam is studying angles in math and we talked this week about what it means when someone does a 180 so I thought it a good title for this post. After a sleepless Thursday night where we were chasing pain and trying to get Sam comfortable we had a long day in the hospital yesterday where […]
Pain Seems to be a Little Better
Thursday, January 7th, 2010Sam seems to be doing somewhat better today. He slept through the night last night which was not the case on Tuesday night. We were up most of the night trying to get a pain med combination that would let him sleep. We’d give him something and then an hour later he would wake up again. […]
Back at It
Tuesday, January 5th, 2010We were in the hospital all day yesterday getting Rituxan and vinblastine. Sam’s pain returned on Saturday and has been getting worse in the past couple of days. He’s been on hydrocodone and prednezone and yesterday when we got to the clinic his arm was hurting so badly that he got a dose of morphine. We met with the pain team […]
Happy New Year’s Eve! 100 Wishes for Sam
Friday, January 1st, 2010Happy New Year’s Eve! Sorry to leave everyone hanging. It was a short stay in the hospital and we were out on Tuesday afternoon. We spent the afternoon at the beach at low tide passing the football around and today the boys were at the park all day with a passel of kids, Monacos, Brunettes, […]
Short Stay (We Hope)
Monday, December 28th, 2009Sam’s ANC caught up with him yesterday and he felt low all day. Then about 8pm he spiked a fever. He so did not want to go in to the hospital. He said, “please don’t call.”  We have to call of course with 101.5 but we thought we’d go through the ER so we could […]
Merry Christmas to All
Friday, December 25th, 2009Just a quick note to say Merry Christmas to everyone.  The boys had a ball and the carnage was considerable. Sam got a surfboard and Andy got a snowboard and Charlie got a “mote control car and a mote control motorcycle” from Santa. We are dog-sitting Roscoe the beagle who is barking hysterically at the “mote […]
Getting Ready for Santa
Friday, December 18th, 2009I just got back from Sam’s school Christmas party. He had a great time. They played the greedy Santa game and he stole the new Diary of a Wimpy kid book and got to keep it which made him very happy. It was great to watch him smile and laugh with his friends. His pain […]
Rituxan
Wednesday, December 16th, 2009We are in the hospital today doing a rituxan infusion. Rituxan is normally used for NB kids to get rid of HAMA with 3F8’s. There is strong evidence though that it also gets rid of NB stem cells. Neil can send info. if you are interested. Sam came in early with Neil for his blood check and then […]
Making Watermelon Punch
Friday, December 11th, 2009First of all, thanks for all of the kind comments and offers of help. Just being home has given us all an enormous emotional boost. I’ve made some headway on Christmas (and work) in the past couple of days and am feeling much better.  Sam was set free on Tuesday afternoon and we all went to Andrew’s […]
Our Comeback Kid and Smashing Watermelons
Tuesday, December 8th, 2009I know that I am sorely overdue an update. Sam is still in the hospital but will be going home today. He’ll be on IV anti-biotics for a couple of more days and then oral anti-biotics. It took until about two days ago for his eye to start looking more normal.  Bright light bothered it and it hurt mightily […]
« Previous Entries Next Entries »