Progress Reports
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Saturday, February 20th, 2010Sam came home yesterday afternoon and as usual all of our moods brightened quite a bit. He is on a pain pump and fluids. It was kind of funny because he wanted to make what is becoming our traditional Toys R Us stop on the way home from the hospital and I was trying to […]
Yesterday Sucked but today is better
Thursday, February 18th, 2010We are working on getting Sam discharged. He spent a couple of days in the ICU because his sodium levels were dropping and the only place to get highly salienated fluids is in the ICU. It made us really appreciate the Hem/Onc ward though we did have one rock star nurse who was great. Not our Sheila The […]
Globetrotters and Valentines
Sunday, February 14th, 2010Sam almost made it to his Valentine’s Day party on Thursday but started feeling pretty cruddy about an hour before we were going to go. He wrote out all of his Valentine’s the night before. He loves to do that. I dropped them off to his class and picked up a huge bag stuffed for him and Ms. […]
Radiate
Wednesday, February 10th, 2010The title of today’s post has two meanings. Erik Ludwinski passed away last night. His mother Donna has been our friend and support since we started this journey and Erik has been an inspiration and an example to nearly every NB family. Sam and I were able to have dinner ( a 10pm dinner)  with […]
Home Again Home Again Jiggety Jog
Wednesday, February 3rd, 2010Just a quick update to say that Sam walked (albeit slowly) out of the hospital this afternoon after they discharged us. His fever and neuropathic pain has resolved for the most part and we are all now home again together. I feel a little bit like we’ve been on a yo yo hospital stay lately […]
OK and BMX and much later ER
Tuesday, February 2nd, 2010Charlie will proudly tell you that he can spell both OK and BMX. Sam had a pretty good week last week. He didn’t have any break through pain that was not controllable and slept through the nights and was generally up and around. He’s on 20mg oxycontin twice a day.  He got platelets on Tuesday (11)  and […]
HAPPY BOYS
Sunday, January 24th, 2010Sam came home yesterday afternoon.  Thank you nurse Sheila for working so hard to get us out of there.  The boys were so happy to see each other yesterday afternoon. Neil brought Andy and Charlie out to meet the car. Andy said earlier in the morning, “I’m going to be so happy to see Sam […]
Working Towards Getting Sam Home
Thursday, January 21st, 2010Sorry about the radio silence. Sam has a good couple of days.  He slept through the night once we upped the pain medications and added Decadron and the chemo. Probably a combination of all of it helped to make him feel better. Yesterday he was in the playroom from two to four and six to […]
Hard
Sunday, January 17th, 2010We have had a hard couple of days. Sam had an awful night on Thursday night with abdominal pain and leg and arm and rib pain. We admitted him on Friday morning and he is on a pain pump. Once he got the pain pump going he was able to eat and play chess and […]
Up and Down Days/Scanning Tomorrow
Thursday, January 14th, 2010Sam has had up and down days in terms of pain.  On Saturday we all went for breakfast at Konos with Vickie Buenger, the inspiring Erin’s mom,  http://www.erinbuenger.blogspot.com/  and got to spend  some time with her at our house. Vickie, so great to get to see you. You were such a hit with the boys. Sam used the king […]
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