Progress Reports
« Previous Entries Next Entries »November 2, 2005
Wednesday, November 2nd, 2005Sammy’s urine test from last week was fine. His HMA and HVA levels were down from the previous test and well within the normal range. We only need to worry if they go up. His constant sniffing, I’ve discovered, is a side effect of chemo that many neuroblastoma kids have. I read an explanation on […]
October 27, 2005
Thursday, October 27th, 2005Eeks has it been two weeks since I’ve updated? Sammy has been taking his cis-retinoic acid pills for almost two weeks now. He’s getting pretty good at taking the pills (hidden in a spoonful of ice-cream with chocolate sauce) but it takes a while to get him to do it. I have found myself chasing […]
October 4, 2005
Tuesday, October 4th, 2005We’ve had a good week at home. Not too much activity as both boys seem mostly to want to stay home. Andy had his first day of preschool yesterday and did very well. He was sad when we left but his teacher said as soon as she started getting him involved he did great. I […]
October 10, 2005
Tuesday, October 4th, 2005September 27, 2005
Tuesday, September 27th, 2005NED. NED. NED. Sam is officially “no evidence of disease”. He finished radiation at City of Hope today and then Margot met with the doctors to review all of the scans that Sam completed in the last week. Sam looks great, his immune system looks great. We are a very, very lucky family. It’s impossible […]
September 24, 2005
Saturday, September 24th, 2005How sweet it is! We are home. We walked in the door last night around 9:30 after a very eventful day. Sammy is line free and very happy to be that way. I thought Andy would burst with joy at having us all together in the house last night. He literally jumped up and down […]
September 19, 2005
Monday, September 19th, 2005Sam is upstairs with Julie, his favorite child life specialist playing video games. He had school today with his teacher and did very well. Radiation was a breeze. In and out. Neil and Andy are back home in San Diego and the nurses are unhooking Sammy during the day after he’s had his Vanco. Dr. […]
September 16, 2005
Friday, September 16th, 2005Sammy has a new temporary line in his neck. Yuck. That will last about a week and then they’ll put a new hickman in. He’s feeling fine though and has been having a good time with his dad. Neil has been up there since Wednesday afternoon after the surgery and said that radiation is going […]
September 14, 2005
Wednesday, September 14th, 2005Quick update – We are going to be in the hospital for at least fourteen days so Sam can finish his Vanco treatment. They think his line is infected and they will have to take it out and put in a temporary line until the infection clears and they can put a new one in. […]
September 10, 2005
Saturday, September 10th, 2005Change of plans. Sammy is in the hospital this weekend with a blood infection. He spiked a fever of 103 yesterday morning about 11:00. I brought him in to the hospital and they admitted us. His blood cultured positive (this is the first time we’ve cultured anything) but we won’t know what it is until […]
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