Progress Reports
« Previous Entries Next Entries »August 6, 2006
Sunday, August 6th, 2006The doctors think the HVA and VMA numbers are good news since the HVA is down so much and the VMA is still normal. I think they are all still concerned about the scans though. We are scheduled for a new MIBG, MRI and more blood work on the 16th and 17th of this month. […]
August 4, 2006 – (five minutes later)
Friday, August 4th, 2006August 4, 2006
Friday, August 4th, 2006Just a quick update today to say that we still don’t have the VMA/HVA back from the urine test. I’m hoping it’ll come today and we won’t have to wait the weekend. Neil is coming home today at 12:45 and the boys are I will go pick him up at the airport. He had a […]
August 3, 2006
Thursday, August 3rd, 2006Sorry for the lack of update yesterday. Neil met with Dr. Marris and he thinks we should go on the Fenretinide trial and has already saved a spot for us. He is truly amazing. He’s talking with Dr. Willert, and Dr. Villablanca at CHLA. Dr. Willert has been really great in terms of communicating and […]
August 1, 2006
Tuesday, August 1st, 2006Sam and I just met with Dr. Bowman and it wasn’t very encouraging in terms of doing the biopsy. He said that he’d have to do the biopsy by measurement only on the MRI and he’s used to having plain films (X-ray) to look at in the OR. Since he can’t feel anything on the […]
July 31, 2006
Monday, July 31st, 2006Whew! What a day. Neil is on a plane to Philadelphia to meet with Dr. Marris and will also meet with Dr. Cheung at Memorial Sloan Kettering in New York about treatment options. We got an email from Dr. Marris this morning saying that he wouldn’t do a biopsy but would move forward with treatment […]
July 29, 2006
Saturday, July 29th, 2006After working out all of the insurance issues we finally have an appointment for a surgical consult with Dr. Bowman on Tuesday at 3pm. We’ve had the bone marrow biopsy sent up to Dr. Seeger’s lab in LA so he can see if they find anything from the bone marrow biopsy last week. It was […]
July 24, 2006
Monday, July 24th, 2006We met with Dr. Willert today to discuss Sam’s scans. The good news is that the CT and bone marrow are clear. The bad news is that the spot on the femur that showed up on the MRI at City of Hope is still there. It’s lighting up on the MIBG (where we saw it […]
July 13, 2006
Thursday, July 13th, 2006Happy Birthday Sam! Six years ago today I was at home getting my home office set up with our office Computer Guy. I had finally decided that I’d better get going on that – though I was still telling everyone that I had plenty of time to tie up all the lose ends at work […]
July 10, 2006
Monday, July 10th, 2006Yikes – another three weeks have gone by. Hope everyone had a great 4th! The boys did. We spent all day in the pool with Joe and Jake and then went over to Darcy and Mike’s for their 4th of July party. The kids had a great time. It’s kid paradise over there and there […]
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