Progress Reports
« Previous Entries Next Entries »August 14, 2007
Tuesday, August 14th, 2007Sam’s bone marrow is clear. We are officially NED (No Evidence of Disease). We were on cloud nine for a few days. We’ve since come down to cloud six because we know the realities of this disease -but I must say that the view from cloud six is very nice. Neil and I keep elbowing […]
August 10, 2007
Friday, August 10th, 2007The following is directly from the official MIBG report we received today: FINDINGS: There is physiologic distribution of radionuclide throughout the body. No evidence of metastatic lesions. The previously seen small foci of increased radiotracer in the left distal femur are not well seen on the current study. **************** Did you catch the “No evidence […]
August 1, 2007
Sunday, August 5th, 2007Just a quick update to say that Sam’s numbers yesterday were beautiful. VMA 2.(something) -sorry don’t have exact numbers handy- HVA: 7.(something) LDH 647. Since we haven’t heard from Texas Childrens, we’ve gone ahead and scheduled scans for next week. MIBG is next Wednesday and bone marrow biopsy (yuck) is on Thursday. Sam is doing […]
July 24th, 2007
Tuesday, July 24th, 2007We finished day two of chemo today. Sam’s LDH yesterday was 614 – still going down. Hurray. Perhaps we shouldn’t freak out so much over each change, but then that is our nature – we are freaker outers. I guess you’ll just have to keep that in mind as you read updates of me freaking […]
July 21, 2007
Saturday, July 21st, 2007Â Hey look, Ma. I’m walking. Family at the Park on Mom’s B-day Â
July 13, 2007
Friday, July 13th, 2007Happy 7th Birthday to Sam, our amazing little (getting big) boy! Sammy, you are our inspiration. You have a wicked sense of humor and a quick smile that goes straight to the heart. I love to watch you laugh (a couple of nights ago you were laughing so hard at Charlie Brown that you couldn’t […]
July 11, 2007
Wednesday, July 11th, 2007Sam’s LDH is steadily on the rise. It jumped to 704 last week and was measured at 743 yesterday. Though we are still within normal range, the trend is not good. We did a VMA/HVA yesterday and should get results back tomorrow or Friday. A couple of people have asked me lately if LDH is […]
June 21, 2007
Thursday, June 21st, 2007Happy Official first day of summer! The boys are jumping in with both feet. They just got back from Anthony’s birthday party complete with jumpy and water balloons. They have Luke’s sports party tomorrow and then on Saturday we leave for New Mexico. Sam’s last day of school was on Tuesday and they had a […]
June 8, 2007
Friday, June 8th, 2007Wow, a lot to update, June has been quite a whirlwind so far. Monday morning we wrapped up the Coins for a Cure fundraiser at Sam’s school. TeamSam rode in with their new TeamSam jerseys on and thanked all of the kids for all of the money raised and gave Sam his own TeamSam jersey. […]
May 19, 2007
Saturday, May 19th, 2007My dear friend John London and his wife Catherine lost their daughter today. Penelope was diagnosed with neuroblastoma in October, 2003 and pioneered many treatments. Her parents funded the University of Vermont nifurtimox trial which will prove to have the best response rate for relapsed neuroblastoma kids when all is said-and-done. John did more to […]
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