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October 16, 2007

Tuesday, October 16th, 2007

Oh that I were a hacker.  I would hack into the Children’s San Diego computer and find our own scan and VMA/HVA results.  Still no phone call.  As of yesterday when Neil called, they were still pending.  I called and left another message this morning.  Argh.

October 12, 2007 – Picture Day

Friday, October 12th, 2007

It is picture day at school today. Mrs Gage moved Sam’s class picture to 11:10 so he could come back from the scan in time to take it. Thanks Mrs. Gage. Should be much easier than the picture he just took. We’re not sure of MIBG results and are going to have to wait for […]

October 1, 2007

Monday, October 1st, 2007

September 17, 2007

Monday, September 17th, 2007

Are you aware that September is national Pediatric Cancer Awareness month? Before Sam was diagnosed I was vaguely aware of pediatric cancer in the sense that I gave money when I saw telethons and dropped off a toy at preschool at Christmas for Children’s Hospital. fter our pediatrician said the ten words that turned our […]

September 17, 2007

Monday, September 17th, 2007

Are you aware that September is national Pediatric Cancer Awareness month? Before Sam was diagnosed I was vaguely aware of pediatric cancer in the sense that I gave money when I saw telethons and dropped off a toy at preschool at Christmas for Children’s Hospital. fter our pediatrician said the ten words that turned our […]

September 10, 2007

Monday, September 10th, 2007

School Days Sam had a great first week in school. He has Mrs. Gage again (hurray) because she moved to 2nd grade. He loves his new classmates. He took a picture that Tony Hawk signed for him in for sharing today. He was very excited to show it to everyone (thanks again Mikulaks for making […]

August 31, 2007

Friday, August 31st, 2007

Here are some pictures from our busy July and August at last. Still battling major tummy problems this morning. Sam was pointing to higher in his chest this morning so I just ran and bought and industrial sized carton of Tums. Hoping that will do the trick. We find out who Sam’s teacher is today. […]

Thursday, August 30th, 2007

Thursday, August 30th, 2007

We are home from Texas – got in about midnight last night. Everything went very smoothly. Sam was a champ in the hospital and the Texas Childrens staff was great. Sam’s tummy hurt after he ate for the four days in-patient and he threw up some on the night of the off day but otherwise […]

Later on August 24th, 2007

Friday, August 24th, 2007

Oops. Except for the throwing up and nausea side effect. Yuck . Poor Sam. Neil and I just did the trade off after I spent the afternoon at the Hannons with Charlie and Andy. It’s about 9pm and Sam is sleeping.

August 24, 2007

Friday, August 24th, 2007

We are in Houston at Texas Children’s Hospital. Sam is about to be infused with his CD45 anitbody. It’s a seven to eighthour infusion for four days. He’s been triple medicated (tylenol, benadryll, and steroids)to protect against an allergic-type reaction and he’ll get benadryll every four hours druing the infusions. They expect him to spike […]

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