Progress Reports
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Thursday, September 11th, 2008We did an new scan for us on Tuesday and Wednesday of this week. It’s called an octreoscan and it’s similar to an MIBG scan but it’s over two days and the injection is different. The Tuesday scan was 4-hours post-injection and the Wednesday scan was 24-hours post-injection. It is a much clearer scan than […]
First Week of School
Friday, September 5th, 2008Before you read this post, I have a couple of places to send you today:Â First please click on the following link to see the wonderful Lacey Family and Magic Water on the Boston news:Â http://www.thebostonchannel.com/video/17394176/index.html Second, Erin Buenger is in the hospital facing five days of continuous chemo and it would be great if […]
Max
Monday, September 1st, 2008Max’s wonderful laugh was silenced last night. In a galaxy far, far away, there is an angel fighting alongside Luke Skywalker and Princess Leia to make the world safe for everyone. Please keep his family in your thoughts & prayers and visit his site at www.mikulak.org Neil.
Scan Looked Good
Friday, August 29th, 2008We just got back from our 8am scan and it looked good. There is one small spot clearly visible above the left knee. The two spots that were on the right leg are gone and the spot on the arm looked gone (or if it was there it was very faint and we had to […]
Therapy
Tuesday, August 26th, 2008Some days I feel like the Annette Benning character in American Beauty when she is chanting to herself “I will sell this house today, I will sell this house today, I will sell this house todayâ€Â as she’s furiously scrubbing the dirty counter tops and sweeping the leaves. I am sometimes gritting my teeth to […]
Quick Numbers Post
Sunday, August 24th, 2008VMA 7.3 = Normal HVA 10.1=barely high. Hallelujah! MIBG Scan is Friday of this week. Injection Thursday. Facts learned by Sam at SeaWorld camp last week. “Did you know that when it’s dark in the water Dolphins find their food by sound?” “There are two kinds of tall penguins. The king penguin is kind of skinnier and […]
SeaWorld Camp This Week/Good News-Bad News
Monday, August 18th, 2008The boys at the end of tennis camp last week.Left to right: Beau,Andy, Grant,Sam,Mack Sam and Andy loved tennis camp last week. They came home every day excited about the all of the games they played (Jailbreak, something called Wolf and several others). This week is their second camp of the summer, SeaWorld Camp. Charlie and I […]
Happy Birthday Charlie!
Monday, August 11th, 2008Charlie is two today! He had fun at his party yesterday and will open his family presents tonight when Neil gets home from work. A few quotes from our little boy might give you some insight into his personality: “Mom, what doin’?” “I’m folding laundry Charlie, what are you doing?”  “I’m doin’ whoa! Watz this!” […]
Good Cats
Wednesday, August 6th, 2008 Boys and Dad at the park after water balloon fight VMA/HVA last week were 10.6 and 13.9 so HVA is on the way and VMA is holding steady. I dropped the boys off at tennis today and Coach Joe said they are going to grow out of their rackets pretty quickly with “their talent.”  […]
What We’ve Been Up To
Thursday, July 31st, 2008Neil and boys at the Nighttime zoo All of us saying goodbye to John and Sock at the airport John, Sam and Neil at Paradise Point Hotel Everyone is doing well. Sam has great energy and has been eating well. His weight has stayed steady at 24.4 kilos (most he’s ever weighed). We had a […]
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