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Holding Steady

Tuesday, November 11th, 2008

Things are holding steady here.  Our VMA/HVA numbers were almost the exact same last week as the week before.   We’d like to see them go down but happy they are not going up.   We had a great time with my dad and Stephanie in town.  They were great with the boys and a huge help.  […]

Halloween

Monday, November 3rd, 2008

Mom and Boys Andy and “most excellent” Andrew (explained below) Mom/Dad/Sam -couldn’t get Andy or Charlie to sit for this one. Baby Tomlinson (as the boys call him) Sweet Sam LT Andy after getting his hair sprayed really red at the crazy hair booth at the Halloween Carnival Baby Tomlinson (Don’t mess with me!) The […]

When is Your “Not Too Distant Future?”

Friday, October 31st, 2008

I know that I am being a scary complainy and bitter person and I promise to stop but I just thought I’d post the following Google alert I received today: Researchers develop novel anti-tumour vaccine Science Centric | 30 October 2008 14:12 GMT A novel anti-tumour vaccine for neuroblastoma and melanoma developed by scientists and clinicians at Children’s National Medical […]

Halloween/Halloweden

Tuesday, October 28th, 2008

First of all, I have been very remiss in not reporting on our website about HallowEden and event that the Brunskows are put together for Halloween to honor their beautiful Eden.  Volunteers dyed their hair orange (Eden’s favorite color) for Halloween to raise money for MagicWater.  Here is a link to the story on the front page of […]

The Dark Side of the Moon

Wednesday, October 22nd, 2008

Sam very earnestly told me the other night when we were out for our after-dinner family walk and it was a full moon, “Mom, you know  you aren’t really seeing all of the moon.  That side is the side lit up by the sun but there is a whole other side that is dark because it […]

Thirteen… PLUS 6.6

Monday, October 13th, 2008

Just adding a number to Neil’s post below.  Sam’s VMA is 6.6! NORMAL, NORMAL, NORMAL!  I’ll  post a Sam update tomorrow after blood check. He had a rough soccer game on Saturday and has lost more of his hearing per his audioligy exam last week-sucks - but he had a good day at school today and is in […]

Once Every Two Weeks

Tuesday, October 7th, 2008

We are moving our blood checks from once a week after school to once every two weeks.  Since we are currently on low dose temodar with some other things mixed in, Sam’s ANC, Red blood and Platelets have been fine. His VMA last week was 7.8!!! and HVA 10.1.   We are keeping weekly VMA/HVA checks.  Charlie and I […]

Update at Long Last

Monday, September 29th, 2008

Neil, Sam and Andy on the big screen at the Padre game Charlie showing his baseball We are all fine.  Sorry for the long delay on updates. Sam’s VMA/HVA numbers came back today VMA: 8.8 (pretty good) and HVA 11.9 (little high).  VMA number made us very happy today.  The boys have been busy with school, soccer, […]

Football Season

Tuesday, September 16th, 2008

Sam Running for the TD touchdown celebration Sam laughing at Dad Charlie for the long bomb   It was a beautiful night last night and we took the football up to the park.  The boys had a great time as you can see.  We had the park to ourselves and it was just one of those unexpected […]

Breaking news

Friday, September 12th, 2008

Quick update to today’s post to provide some mental relief VMA/HVA back down to 9.5 and 9.3. Margot

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