Progress Reports
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Sunday, January 4th, 2009At the Wild Animal Park- Charlie is sleeping nearby in the stroller- Andy just missed putting bunny ears on me by seconds, can you tell by his hands? Charlie the Rockstar Well, I don’t know that we’ll be signing any record contracts or going on tour any time soon but we sure are having fun with Rock […]
Christmas and Post Christmas
Tuesday, December 30th, 2008If we can ever get Andy to do a straight photo, it will be amazing. We took this in front of the tree on Sunday night. The boys were practicing taking pictures and wanted to try one with the timer. We had a very good Christmas. The boys were so excited that Santa came. They all got […]
Velcade, Radiation and a Partridge in a Pear Tree
Wednesday, December 24th, 2008Sam got his first injection of Velcade on Friday of last week and his second yesterday. It goes on day one and day four. We got into the hospital at 7:30am Friday so I could try to get him to meet his class on his field trip for a Wizard of Oz play. Velcade is a […]
Home Sick
Wednesday, December 17th, 2008 Watching the Christmas Parade In the Wagon being pulled to the parade. Sammy has been home sick all this week with a bad sore throat and feeling cruddy in general. His eyes are all red underneath and he’s lost his voice. Andy was home most of last week with high fevers and headaches that finally […]
New Month, New Sport, New Holiday
Monday, December 8th, 2008Wouldn’t it be nice if I could add to that title “New Disease”? Something relatively benign for an eight year old…”Hey we’re all finished with neuroblastoma but unfortunately Sam has developed a gambling addiction and he’s betting for extra cookies at lunch.”  Christmas is the time for wishful thinking. Sorry I’ve been so slack in updating. […]
I Am Thankful
Thursday, November 27th, 2008Pics from Palm Springs  The boys were watching Alice in Wonderland this evening over at the Adams’s house. I didn’t have much planned for dinner and I figured that since it’s the night before Thanksgiving, I could have a pass and offer scrambled eggs, grilled cheese and soup, or something equally easy ( though tecnically […]
Good news
Tuesday, November 25th, 2008Clean bone marrows and no new lesions on the MIBG. We get the final read but we think that 2 old lesions are smaller and 1 old lesion is bigger. We know for sure that Sam’s catecholamines track his disease and this reinforces that.  We also sent samples of his bone marrows to UMichigan and UVermont […]
Untrained Eye Impression of the Scan
Friday, November 21st, 2008Sammy was a champ today. He had his scan at 7:15 this morning because Laureen, the wonderful tech rescheduled the afternoon scan and came in early for us so Sam wouldn’t have to do a scan after a bone marrow biopsy – which turned out to be a good thing. It was hard to tell on […]
Beautiful Weekend
Monday, November 17th, 2008Thought you’d like to see the boys school pictures. We got them back on Friday. I thought they were pretty cute though Andy’s smile is a little forced.  We had a wonderful weekend. Friday night we took the boys down to Belmont park and Neil and Sam rode the rollercoaster (Andy is not quite tall […]
Thank You Bev!
Thursday, November 13th, 2008Bev Browning, the author of GrantWriting for Dummies and a family friend was in town last week to give a Grantwriting Bootcamp at The San Diego Foundation. Bev, it was wonderful to finally meet you after all these years of working with you. I was only able to stay for part of the bootcamp but next time will arrange […]
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