Progress Reports
« Previous Entries Next Entries »Back in the Hospital (Hopefully only for a night)
Wednesday, June 24th, 2009Laser Tag Fun -Joe’s Birthday We were admitted again last night. Sam was peeing blood all day yesterday. He woke up with very red urine but otherwise feeling fine.  He went to science camp with Andrew and they had a great time.  Afterwards, Meredith and I had a picnic with the kids before I had […]
Home
Monday, June 22nd, 2009We got home yesterday morning. Sam woke up feeling good and had been fever free for 24 hours. We were all together for Father’s Day yesterday which was great. Neil got home at 3am on Friday night.  We took it easy for most of the day yesterday and then went to the park yesterday afternoon […]
still fevery
Saturday, June 20th, 2009Sam didn’t do any Cytoxan today. He had blood in his urine right before we were supposed to start it so we just did the topotecan infusion. His throat started hurting this afternoon and his fever got to 103.   The night nurse checked the oxygen machine after she saw his temperature which freaked me out.  He […]
Stopped Cytoxan
Friday, June 19th, 2009We stopped the Cytoxan infusion today. Sam got about 1/2 the dose. He started peeing blood and we stopped it.  Soon after we stopped his urine cleared. I’m thinking it’s a good sign that there isn’t constant bleeding and that it’s clearing with hydration but still it’s not a great sign.  Dr. Willert thinks it might be clear […]
Day One Down -Sam’s Starting to Feel Crappy
Thursday, June 18th, 2009We are in post-chemo hydration and Sam is just starting to feel crappy. His stomach hurts and his fever has spiked again. He was feeling good all day but around 3 o’clock started to get shivery and his stomach hurt. Right after I posted yesterday he spiked another fever and had a fever most of […]
School’s Out, We’re in the Hospital, Chemo starts tomorrow
Tuesday, June 16th, 2009Sam and I are in the hospital today. The plan was to have a 10am blood check, an 11am doctor’s check and then come back this evening around 6pm for a direct admit, a full night of hydration and start chemo tomorrow. Of course we all know things don’t always go according to plan. Sam […]
The Plan
Saturday, June 13th, 2009We have decided we are not ready for ICE. We are going to do TCV: Topo/Cytox/Vincristine nasty enough in itself but perhaps not quite as nasty as ICE. Dr. Modak wanted to do a couple of rounds of ICE but what we will do is try TCV first. If Sam doesn’t have a good response, […]
Home
Thursday, June 11th, 2009We are home. Got in tonight around 10:30. Andy and Charlie tried to stay up but were fast asleep camped out in the living room waiting for us. Thanks to everyone for the NY suggestions. We did get in a lot. We took Sam to the top of the Empire State Building at 10pm on […]
The Big Apple
Monday, June 8th, 2009We are here at the Ronald McDonald House in New York. It’s 9:43 am and Sam, still being on CA time is still sleeping. We meet with Dr. Modak today at 11. We got in yesterday at around 4:30 and got checked in and such by 6:30. Uncle Matt and Rosco (the most awesome beagle) picked […]
A Few Pics
Thursday, June 4th, 2009 Andy, Jake and their girls on their field trip, Sam and Joe on their field trip, Sam holding Patrick the starfish, and Charlie on the swing (pic by Meredith)
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