Progress Reports
« Previous Entries Next Entries »Happy Birthday Sam!
Tuesday, July 14th, 2009It’s Sam’s birthday today. He is officially nine.  We are so proud of our Sam. He had a great laser tag party on Saturday night with all his buddies and played in his basketball game on Saturday morning. There is no quit in our boy. He dribbled well and passed well and was fouled while he was […]
Less Impressive But Still Impressive
Friday, July 10th, 2009By our untrained eyes the scan looked better.  We didn’t have the NY scan to compare it to up on the screen but it looked like we cleared some of the left leg and the left arm and possibly a few other spots. That said, the spine still lit up, the entire right leg including the […]
Slowly
Tuesday, July 7th, 2009We are home on IV antibiotics that areadministered every eight hours. Sam is eating here and there a little here, a lot there. He ate four pieces of challah bread at Lisa’s today. He is tired and unlike other times when we’ve gotten out of the hospital and I’ve had to caution him to take it easy, […]
Happy 4th! Sam is Getting Out Today
Saturday, July 4th, 2009Qucik update. Sam’s rash got worse Thursday but better yesterday. They biopsied and have pretty much concluded it was a drug reaction. Sam’s line cultured one other day so we may have had a line infection too.  He hasn’t cultured in the last several days though so I’m not sure he’s going home on IV antibiotics or […]
Spoke Too Soon
Thursday, July 2nd, 2009Sam woke up with a painful red rash all over his body yesterday. We thought it might be a drug reaction to Vanco but most of the doctors that looked at it – we had in infectious diseases, dermatology and the oncologist on the floor look at it- didn’t think it looked like a drug […]
Line Didn’t Culture From Yesterday
Wednesday, July 1st, 2009So they are thinking it was probably an outside contaminant and not a line infection because the culture they did yesterday morning at 4am before starting the Vanco didn’t culture which means the blood was contaminated after they took it out of Sam. Hurray. Anyway, we hope so. If this mornings culture comes back negative […]
Line Infection
Tuesday, June 30th, 2009Sam has a line infection. They cultured something.  That would explain the fevers. He is now on Vanco which he has to be premedicated for because he gets redman’s syndrome so he is sleeping at the moment.  Neil said he woke up happy and in a good mood before I got here then tried to eat something […]
Generally Miserable
Sunday, June 28th, 2009We are on day three of high fevers with no counts. The doctors want to do a CT scan to make sure we aren’t missing anything and add an anti-fungal. ANC was zero today and platelets were 63 -right after yesterday’s infusion so he’s not making many platelets.   His stomach hurts and last night right […]
Back In
Saturday, June 27th, 2009Sam’s fever spiked on Thursday night and his ANC was zero so we were admitted.   He’s not eating much of anything but otherwise feeling ok. Mimi came and visited yesterday and Mac may come this morning if and when Sam wakes up and Joe will come this afternoon.  He’s getting a red blood cell transfusion right now and Neil […]
Out but in clinic for blood today
Thursday, June 25th, 2009We got out of the hospital yesterday afternoon. Joe came and horsed around with Sam all day until we got out and they had a great time playing video games, seeing the miniature horses that were there and going to the play room. Thank you Joe and Colleen. We had a nice afternoon, dinner together […]
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