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Cystoscopy Today and Pictures from Deb

Friday, October 2nd, 2009

Sam is having a cystoscopy today.  You can learn about the procedure here:  http://www.urologychannel.com/diagnostictests/cystoscopy.shtml  It’s my fault we are doing it today because Neil and the urologist wanted to do it last week when we were inpatient and I didn’t want to put Sam through it thinking things would clear up but unfortunately they haven’t.  He’s […]

Happy Friday

Friday, September 25th, 2009

We got back VMA/HVA numbers today:  11.1 VMA and 14.1 HVA.  These are the lowest Sam’s numbers have been in a year!    We are over the moon.  Sam is home from the hospital but still on hydration so no school or soccer.   We talked Dr. Willert into letting us out yesterday on home hydration so we […]

“Why Does Sam Get All the Lucky Stuff?”

Wednesday, September 23rd, 2009

We are in the hospital with red pee.  Sam has been peeing blood continually since Saturday and though we called in on Sunday as soon as they saw his urine sample Monday morning we were admitted.   He played soccer on Saturday and probably was dehydrated from a week at school not drinking enough and then a […]

Charlie’s first day/forty minutes

Tuesday, September 15th, 2009

Charlie on his first day.  Not happy Charlie on the bike ride after he escaped from preschool So, I thought I was going to post today on a silent house and the significance of Charlie’s first day of preschool.  But alas, Charlie had other plans.  I knew we were in trouble when we started talking […]

19 and 19

Friday, September 11th, 2009

Those are our VMA/HVA numbers from Monday.  Just got them back.  Yeah Baby!  Sam is at the hospital getting blood.  Wednesday’s red blood was 7.8 and platelets were 65 so we’re starting to drop.  I’m picking up Andy from school and going to meet Sam and Neil at the hospital.  Neil said Sam is one mad […]

First Day of School

Tuesday, September 8th, 2009

The boys on their first day of 1st and 4th grade Ready to go! Charlie having a blast flying in the pool – courtesy of Uncle Tom Sam playing golf Andy golf Charlie ping pong Sam in cooking class Andy mixing it up   We dropped the boys off for their first day of school […]

Much Better

Monday, August 31st, 2009

Sam has gotten incrementally better every day since we’ve gotten home.  He stopped morphine the day after we got home and stopped limping a couple of days later.  He needed a cart ride and to be carried  through the airport but now is not limping at all.  Wohoo!  His tongue and taste budswere still pretty […]

Coming Home Today

Wednesday, August 26th, 2009

Sorry for the lack of update. Sam and I will be on a plane tonight at 6pm. No fevers yesterday. Pain under control. Ate a few bites yesterday and perked up a bit. He is so happy to be going home. He has been through hell and back, and since he is back I can […]

Good News/Bad News

Monday, August 24th, 2009

So the good news is that Sam’s radiation level is at 4.3 and if we didn’t have any other issues we would be out of here today after the scan. The bad news is that Sam’s leg pain seems to be worse, he spiked a fever last night and his stomach is really screwed up. […]

Turning the Corner?

Sunday, August 23rd, 2009

I think we are turning the corner today.  Yesterday was pretty tough.  Sam was in a lot of pain in his right leg so we spent the day trying to catch the morphine up to his pain. It sucked.  A lot.  I think we finally succeeded in the late afternoon and Sam was up all night […]

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