Progress Reports
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Wednesday, December 2nd, 2009Just a quick update to say that the head CT showed that Sam has orbital cellulitis. Basically it’s a sinus infection in the eye that can be quite serious but should be knocked out with the antibiotics within 24 to 48 hours. That’s a relief. Don’t know how left arm and leg relate but will […]
Inpatient
Wednesday, December 2nd, 2009We are inpatient tonight. Sam had very bad head, leg and arm pain last night and a fever. We gave him morphine at about 1am and he went back to sleep. Neil called in the fever and Dr. Roberts said he’d be ok to wait until morning given he was sleeping at the time we called and […]
Clean bone marrows!
Tuesday, December 1st, 2009We got the official report back today from San Diego and aspirates and biopsy were clean. Yeah! We still have to reconcile the other read indicating heavy involvement but that will work it’s way out in a few days I’m sure. So official reads are stable MIBG, clean CT/MRI, clean marrows. What’s confounding this is […]
Nice Thanksgiving Weekend
Monday, November 30th, 2009Since everything starts up tomorrow – school, work, hospital, infusions, blood counts, VMA/HVA from last week – I thought I ought to post that we had a great Thanksgiving weekend overall.  I stayed off of my computer for three straight days and it was very relaxing. The night before Thanksgiving Andy had the stomach flu […]
Breathe
Tuesday, November 24th, 2009Sam had his first treatment in the hyperbaric oxygen chamber this morning. It looks like a little submarine and he was in there with two other adult patients who were very nice. Sam was pretty nervous to do it but watched Pirates of the Caribbean and gave me the thumbs up through the little window I was able to peek through. The […]
Neil and Sam Home Tonight
Wednesday, November 18th, 2009Neil and Sam are coming home tonight at 10pm. They were scheduled to meet with Dr. Maris at 12:30 tomorrow but we have decided to do it by phone as Sam is not feeling all that well. The scan is better in some spots and worse in others.  Sam has shoulder pain now and has […]
Neil and Sam in Philly tonight
Tuesday, November 17th, 2009Okay, so I’m sure you did a double take at that title after yesterday’s early morning post. That’s what I get for lagging on the news. Sam woke up yesterday much much better and went outside to visit with his brothers without his sunglasses. He had a bit of a low grade fever in the […]
In the Hospital with Fever, Head Pain and Eye Pain
Sunday, November 15th, 2009Sam’s headaches got progressively worse. Wednesday night he woke up crying in pain and holding his head. He went back to sleep with some tylenol and then Thursday we were in the clinic trying to find the cause of the headaches. His eyes hurt and were very sensitive to the light. We thought it might […]
Engrafted
Thursday, November 12th, 2009Sam’s stem cells have officially engrafted. His platelets today were 86 - up ten from 76 on Monday without any help at all from a transfusion! I keep thinking of when we collected those stem cells and how it seems like a lifetime ago. I looked back at my post from March of 2005 with little […]
One Week to Scans in Philly
Sunday, November 8th, 2009Sam stayed home from school for the most of last week. He was feeling fine but there were nine kids out in his class with some version of the flu and a couple of confirmed cases of swine flu. Also, we figured it might be good for him to take it easy for a few […]
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