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Quote of the Week
By Margot | June 4, 2008
Last week after the CT scan Sam and I went out to lunch together at Konos. Konos is a little surf shack right on the boardwalk with one of the best breakfasts (and lunch) in town for not much money and basically smack dab on the edge of the Pacific Ocean.  You wait in line to make your order and then go sit on the deck and look at the ocean and people watch on the boardwalk until your food comes along. Sometimes if you are lucky, the naked rollerskater guy will rollerskate by in some crazy get up (always with only a thong on the bottom) and give you a good conversation topic. Fortunately for the people who own Konos and unfortunately for those of us waiting in line, Konos has been discovered by tourists and (especially in the summer) the line can wrap around the block. I figured 11:30 on a Wednesday couldn’t be too bad but there was still a hefty line when we got there. While you are waiting in line at Konos you can always read the stupid quote of the week. Some of them are very funny, like “What is in your coffee?” or last week’s was, “Can I have my eggs sunny side down?” Anyway, as I was standing there I was inspired to post some quotes from the past week and get a quote of the week going of my own.Â
Sam’s quotes of the week: “What, you mean you and Dad don’t get the summer off? Why not? You have to work through the summer?” Five minutes later: “I think I know what I’m going to be when I grow up…….President of the United States so I can make a law so people don’t have to work in the summer.”
Sam while watching hockey two nights ago: “Do they lose their teeth on the ice?” Me: “Yeah, I’m sure they do.” Sam: “Well how does the tooth fairy get them, do they even get money for those teeth?”Â
When I just went to give him some medicine at school: “Mom! Guess What? My sweatshirt? It’s MADE IN CHINA! CHINA! Look at the tag, do you want to look at the tag? See? It says CHINA!”  It just killed me, he’s so cute.
He had another good one about who he’s going to marry but I may get in trouble if I post it.
Andy’s quotes of the week:
“Uhhh….. Don’t come down here yet!” This as I’m walking down the stairs. He’d taken a bag of chocolate chips from the kitchen, opened them in an exploding fashion and there were chocolate chips covering every single section of the carpet. Â
After being asked if he wants to do theatre camp this year: Theatre Camp? No. Not unless they have fighting camp and I can be in a Star Wars or Ben Ten Movie.” Me: “Well you could practice for being in those kinds of movies in Storybook camp.” Andy: “Storybook camp? N.O. spells NO!”
Charlie’s quote of the week: ” Charie trew up. I trew up.” (Charlie has been sick for the past five days first with croup and now with a cough and cold.) He’s much better today and back to his “mocycle” and “vrmm” vrmm” spotting.
Insensitive quote of the week: “How old is Sam now?  Almost Eight?  Well that’s three more years than anyone thought he would make it, right?”Â
Dr. Willert’s quote of the week:Â Â “Yes, that is a clean CT scan report.”
So, no soft tissue disease. Wohoo! Not that several boney lesions are anything to scoff at but we were very relieved that the CT was clear.  The HVA was 24 back up from 19 last week and the VMA was 14 down from 15 last week. These numbers are not what we’re hoping for in terms of a homerun with this chemo. There is cancer brewing there and we’ll have to keep close tabs on it. Physically, Sam is doing very well.  We’ve moved around some of his pills, cut some out, added back in Megace for appetite and are giving zofran regularly and he’s been eating very well this week. Of course, we are on our off week. His counts have held up well, not even close to the need for any transfusions (I don’t have them handy, sorry, but they have been pretty normal). We’re going in early tomorrow for regular CBC and hem panel and blood tests for Dr. Belanger (though not as many as usual and we’re seeing that some of the numbers are steady).  We did another urine test yesterday and we’ll be doing them weekly. He has a puffy eyelid on his left eye that’s been bothering him some but he’s on anitbiotics (he tested positive for strep last week when I took Charlie in for croup, but he never really came down with anything so we must have caught it really early) so Dr. Willert thinks that should take care of any infection. It seems like there is always something.
Sam has eight more days of school left and is having a great time with all of the end of the year stuff. He and Joe and Alex are going bowling with Mrs. Gage today. We won it at the auction and Sam is so excited. He’s been asking about it for two weeks. We’re planning his birthday party (which will probably be a laser tag party) so we can get invites to the kids in his class before school lets out.  The basketball draft is this Friday for the summer league.
Andy’s end of the year party for preschool is today at the beach. We are going to miss his little school and his teachers so much. They really played a big part in nurturing him through the past two years and helping him gain confidence. He’s made awesome friends there as well. Charlie is on the waiting list to go there when he is three. Â
That’s it for today’s update. We’ll start chemo again on Saturday.
MargotÂ
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Topics: Progress Reports | 3 Comments »
June 5th, 2008 at 1:07 am
Bowling was so much fun today….
They each had their own individual style!
Bowling Quote of the Day…
Mrs. Carlson? Yes Sam…
I’m in 1st place right? Yeap, you sure are Sam.
And….Natalie’s in 2nd place? Yeap.
Hey, well ahhhhhh…. how’s Joe doing?
Sam was the big winner today at bowling….so we just had to take a picture of the score board! Pics to follow! Go Sam!!!!!
June 5th, 2008 at 1:39 am
My quote of the day “Great news Margot! Go Sam Go!”
June 5th, 2008 at 2:53 pm
Very enjoyable read today, Margot. I have been hoping for an update for several days and was glad to get both good news (on the CT scan) and a bunch of normal news (on the boy front).
Erin’s energy fluctuates some, but she looked really good at soccer tryouts both Monday and Wednesday, and actually did every single thing that all her team mates did (a first in quite a while).
VB