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February 9, 2007
By Margot | February 9, 2007
Best laid plans…..
All three kids are sick and coughing up a storm. Dr. James thinks Charlie has RSV which is going around. He was wheezing a bit and coughing, though the past couple of days he seems to be getting better. He’s still in a great mood and since he’s healthy otherwise and big for his age, Dr. James thinks we can just let it run its course without steroids or any other treatment. I think he’s on the back side of it now anyway and has been sleeping much better. Sam had a low grade fever on Wednesday night and fell asleep at 6:30pm and slept all night. I’m not a fan of low grade fevers and a lot of sleeping because it reminds me of right before Sammy was diagnosed and I panic. So, you can imagine my relief (ha ha) when he spiked up to 103 yesterday morning. I took him in to the hospital. We were due to start chemo today but will not since Sam is sick. Since we had such strong anti-biotics last week for pneumonia Sam is pretty well covered for anything bacterial. His white counts are at 16,000 (enormously high) and showing that he’s fighting it off. His chest sounds junky but it is all throughout his lungs and not in one particular spot (which would indicate he might still have some pneumonia). Dr. Roberts is pretty sure what he has is viral (seeing as Charlie has RSV a reasonable assumption) and he said we could go home and didn’t have to be admitted. Hurray! Andrew woke up yesterday with a fever and feeling miserable. He and Sammy mostly just laid around yesterday. They are all three still coughing but I knew we were going to be in better shape this morning when Andrew woke me up at ten to six by poking me in the face saying “I’m hungry, will you make me some apples and peanut butter?” and Sammy woke up and wanted to put on his Ninja turtle outfit. Sam is missing his field trip today to a dance studio. I was supposed to drive for it. It would have been so cute but he’s happy to be downstairs playing with Andrew and had a great week at school before he got sick. The plan for chemo to take an intermediate path before switching totally to oral chemo. We will keep the IV Topetecan which is only an hour infusion and take the Cytox orally. He can do the infusion every day after school and the plan is to start on Monday with that for five days and see how he tolerates it. I’ll pick him up early Monday from school so we can do a doctor’s check before starting and Dr. Roberts can give us the ok.Â
I got back Monday from Austin and a very emotional long weekend. My grandmother Owie’s funeral was last Friday and Aunt Molly’s was on Sunday. They were both wonderful tributes to two amazing women who shaped me in so many ways and I am missing them. I was lucky to have them. It was good to see both sides of my family and I marveled on the way home at how much I love them all. Neil and Sam and Andy did well together here and Neil got Sam to school on time on Monday. I was so impressed! Mrs. Gage made me laugh when she told me Neil was slightly frazzled at drop off and she asked him, “Does he have socks and underwear on?”
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More on Monday when I can tell you all how Sam is tolerating his new “easy” chemo.
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Margot
Topics: Progress Reports | Comments Off on February 9, 2007
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