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December 20, 2007
By Margot | December 20, 2007
Only five more days until Christmas as Sammy so joyfully told me last night. The boys are doing well we are running around in a pre-Christmas rush. Sam had his Christmas music program this morning and was so cute dancing to all the songs. He had labs yesterday, I know it’s been a while since I’ve posted numbers. I don’t even have them back yet if you can believe it but I’ll post as soon as I get them. They’ve been pretty steady, the last few times. We brought chocolates in to all of the nurses and Sam wanted to hand them out but then he got a little shy. Since we gave them to all of the nurses, Sam was really concerned that the nurses who help him out all the time get their fair share and that we were giving a big enough box to Dr. Willert.
The boys are all signed up for basketball and I’m the coach. Tomorrow night is our first meeting and Sam and Andy are on the same team with Joe, Jake and Luke Brunette. Sam and Andy are so excited they can’t stand it, they keep asking me when the first practice is. Practices are going to be interesting with Charlie but he’s a ball lover, so hopefully they’ll go well. I’ll have to call up my brother for some pointers.
Andy’s preschool party is today as well. It’s his first day back to school after a couple of days out – he had a 24 hour throwing up bug a couple of days ago.  It was lovely.
We’ve gotten a very nice response to the article in the Wall Street Journal with many emails from people who want to help out. We are so very grateful to Geeta Anand, the reporter for bringing some visibility to the cause. She was wonderful to get to know and has been really nice to work with. She is a gifted writer and we are very lucky she wanted to feature us. To be honest, I wasn’t thrilled with the title of the article – I’m not sure any mother would be – but that aside, we’ve been overwhelmed by the kind and positive responses. We’ve been contacted by other media outlets and I’ll keep you posted on that front. If we do anything, we would like to make a bigger story to inlcude all of the parents who are fighting this fight because we are not in this alone. There are so many parents doing amazing, heroic things- the Londons (who we owe everything to), the Mikulaks, the Laceys, the Whitmers, Pat Tallungan, the Scotts, the Thomases, The Beungers….
I’m sorry I couln’t get the link to the article to work, I think the article isn’t up anymore but Geeta got us permission to put the whole thing up on the website so I’ll get that done shortly.
In the meantime, I hope everyone is having a wonderful holiday. We are off to New Mexico on Monday. It is a chilly 14 degrees there and I’m packing all of our snow gear. It would great if we can get the boys up on skis this time around. I know Taos is open, not sure about Los Alamos or Santa Fe ski hills, there might not be enough snow yet. In any case, they can sled at least. We’ll do a pre-Christmas Christmas here this weekend with Cathy’s kids, Maureen and Joe, Jakey and Arielle.
Happy Holidays and More soon.
Margot
Topics: Progress Reports | Comments Off on December 20, 2007
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