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Worries

By Margot | January 24, 2008

We got back last week’s VMA/HVA and it is good.  VMA 4.6 (same) HVA 8.5 (down from 10.5).  The Veg F number is 333.  It was 31 in October.  It is now five times normal.  Five times normal is never a good thing.  Veg F is an inflammatory marker and can signal cancer, it can also signal inflammation due to something else, i.e. Sam’s ankles ( I hope I hope). We redid the test today and it takes about two weeks for the results. We are hoping it’s down, if it’s the same or higher, it could still be ankles since they are not getting better but it won’t give us much peace of mind.  We finally got the active braces today and it’ll take a few days to see if they help much.  We’re seeing a sports medicine guy this afternoon to try and get Sam better.  The ankles seem to be getting worse and he’s in a lot of pain walking though he won’t admit it.  We are going to have him take a break from basketball which we tried to gently explain to him last night and he said, “You mean I might have to miss a game?  Why?”  “Because you are having trouble walking” was not a good enough reason.  Neil and I just want him out of pain and able to walk and run.   

He’s home from school today with a bit of a head cold.  He could have probably gone but since we had three different doctor’s appointments in one day, I figured he could use a break.  He’s been doing really well in school and things all seem to be clicking (spelling, reading, math) which is so nice to see.

Andy’s birthday party is on Saturday and he is so exicted.  He’s been waiting to turn 5 forever. He keeps telling people what to get him -very nice. He told me the other day, that he wants to be in kindergarten and not preschool anymore. Charlie is a wild man.  He favorite word is still “jump.”  He’s says “I’m juump!”  when he’s about to jump off something way too high for him.

There are several kiddos out there who are not doing well at all. I want to will them to get better and then I read their websites and they are worse.  It just sucks.  Little Isaac Leiser died yesterday.  He was diagnosed in May and his tumor became chemo resistant. He was trying to get to Vermont for the Phase II Nifurtimox trial but sadly, didn’t make it.  www.caringbridge.org/visit/isaaclieser  Please think good thoughts and say some prayers for his family.

Margot

Topics: Progress Reports | 1 Comment »

One Response to “Worries”

  1. Kristen Buffington Says:
    January 25th, 2008 at 2:20 am

    I hope those braces make it possible for Sam to reach the stars…