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Inpatient
By Margot | December 2, 2009
We are inpatient tonight. Sam had very bad head, leg and arm pain last night and a fever. We gave him morphine at about 1am and he went back to sleep. Neil called in the fever and Dr. Roberts said he’d be ok to wait until morning given he was sleeping at the time we called and his counts are very high. So this morning he woke up with eye nearly swollen shut and a lot of pain in his leg still, though not really his arm. He looked at me from the couch when Neil brought him down and I could see the fear in his opened eye. He said, “Mom am I going to be ok? Is my eye going to pop?” I reassured him that he was going to be fine and cursed while we raced around packing a few things and jumped in the car.  We gave him some morphine before we left and by the time we got to the hospital, he was feeling much better though his eye is still very swollen. Dr. Willert thinks it might be cellulitis of the eye and admitted him for a couple of days of mirapenum. His leg hurts to move or walk but otherwise doesn’t bother him.  Oddly, everything that is bothering him is on his left side. I have no idea if that means anything or if it’s just coincidence. He’s been NPO since about noon and we are waiting for another CT scan.  I’ll post as soon as I know the story. Honestly, we’ve had so much conflicting information lately, it’s hard to know what to think.  We are on an oral interim chemo and sometimes Sam gets pain right when we start chemo which can be tumor kill. So, I’m sorry to make you all play the waiting game with us again. He still has a fever and has been running around 101 all day. I finished reading Harry Potter to him and am giving my voice a bit of a rest now as he sleeps, then it’s on to The Chamber of Secrets (book 2 in the series).  He was just talking in his sleep and he said, “Do we have to take a airplane?”  Our poor tired guy.
Andy had his first all star soccer practice today and Carolyn Briski was nice enough to pick him up with Dusty and Ian and he was so happy to be going with them.  Thanks Carolyn. Charlie had school today and Elizabeth picked him up for us.  I don’t have any details as I haven’t been home.
Will post as soon as I know more on Sam.  Red, white and platelet counts today were beautiful. LDH was 3500.
Margot
Topics: Progress Reports | 5 Comments »
December 2nd, 2009 at 2:14 am
We’re so sorry you’re inpatient. Here’s praying that the pain is being caused by tumor kill.Please let us know if we can come play Blokus with Sam tomorrow. We’re sending extra good thoughts & prayers your way!
Love, M,L, m, & t
December 2nd, 2009 at 2:41 am
Praying for tumor kill and sending lots of good thoughts your way.
December 2nd, 2009 at 3:35 am
ugh, so sorry he is back in, but we are keeping him close to our hearts and in our prayers! Nick read the HP books to Claire Marie and Andrew way back when… Hugs to ALL of you !
Love, Colleen
December 2nd, 2009 at 3:52 am
praying hard for you guys…..i’ve been through this up and down spiral and it sucks….. hoping for a better night and answers……
love to you all
rhonda
December 3rd, 2009 at 12:52 am
Tough as it is having a sinus infection is so much better than the meningitis discussed ten days ago…could the infection just now be presenting?
Keerist on all that Sam goes through and the exasperation and loss of Mom and Dad…
LDH is stunning given clean marrow and the blood issues with LDH…
Clean marrow is huge…
Praying for Sam tonight.