« Line Didn’t Culture From Yesterday | Home | Happy 4th! Sam is Getting Out Today »
Spoke Too Soon
By Margot | July 2, 2009
Sam woke up with a painful red rash all over his body yesterday. We thought it might be a drug reaction to Vanco but most of the doctors that looked at it – we had in infectious diseases, dermatology and the oncologist on the floor look at it- didn’t think it looked like a drug reaction. It looked like the reaction he had to cephapine to me but what do I know. We convinced them to take him off the Vanco and put him on something else anyway. Dermatology wants to biopsy it today to make sure it is not fungal and dangerous.   The oncologist yesterday said even though the line didn’t culture yesterday since Sam is still having fevers, she’s not convinced it’s not a blood/line infection and wanted to keep him on the Vanco- (we switched him off of it). That is very different from what the oncologist had told me the day before.    The oncologist from two days ago was pretty convinced it wasn’t line related since we’d had negative cultures all week if yesterdays were to come back negative which it did. Sam finally got up to do his own time in the playroom with Angela after I’ve been nagging him about it all week but he couldn’t hold the air hockey thing because his hand hurt from the rash and he just looked so strained that I felt terrible. When I went back in he was smiling playing Clue Jr. with Angela but it was a pretty quick playroom time.  Neil stayed last night. I left with Andy and Charlie around 9:15 and he already seemed to be feeling a little better, we played sports hangman that Madison’s mom brought – Thanks Angela!- and the boys loved it. Maybe I was just hoping he was feeling better. I’m hoping to go in early this morning and find the rash fading so he doesn’t have to do the biopsy and he can maybe go home some time this weekend.  I’m hoping his ANC is up and he can start fighting whatever this is.  They wanted to biopsy yesterday with a local but Sam wasn’t having any of that so he’ll need to be NPO today (which is a laugh because he hasn’t eaten anything much anyway).  He is still running fevers 102 yesterday and he is pretty miserable. He managed a few jokes though and when Neil called and I told him Sam was pretty miserable thinking he couldn’t hear me and  he yelled out, “I’m not miserable right now!” His new hearing aids sure do work well. I keep thinking with all of this where the heck would we have been if he had gotten the whole dose of chemo? He got a lot of chemo.
Anyway, I’ll try not to leave everyone hanging and post later today.
Andy has been hanging with the Brunettes the past couple of days and Monday he hung out with Beau all day. He and Luke have done a tennis clinic together and then Meredith took them to the beach yesterday.  Today he has Luke’s birthday party. Thanks Meredith, Lisa, Pam and Monica for giving him some fun. Jett is finally better so Charlie is having a playdate with him today. He is so excited. I bought Thank you notes in the hospital gift shop yesterday and then started laughing to myself because I don’t even know where to start with all of the people we owe Thank You’s to.
Please think good thoughts for our little boy today. I want the smile back on his face and he wants OUT.
Breaking News: Neil just called – no fevers all night and ANC 330 Wahoo! Sam’s still sound asleep so no news on the rash but I’m thinking it’s going to look better now that we are off the Vanco. Here’s to gut feelings. Hope we’re right.
Margot
Topics: Progress Reports | 10 Comments »
July 2nd, 2009 at 2:09 pm
Love the Breaking News!! ANC sky rocketing upwards!!! No fever! That’s great news!!
July 2nd, 2009 at 2:59 pm
Oh, I so know how you feel and am really ready, as Sam is, for the real summer to start. The rising ANC is the best news I have had all morning.
VB
July 2nd, 2009 at 3:13 pm
Sometime the “gut” feeling is the right way to go!! Hope Sam is up and out and wearing the great smile of his.
July 2nd, 2009 at 3:43 pm
Dear Marg,
NPO! Geez I want him out of the hospital also! What do those people do poking and prodding him every hour! Fungal? Its a drug reaction: you’ve seen it before! He hasn’t eaten a thing in 5 days; Look, no fever and rising ANC after being pulled off Vanco! Yikes, Can’t he drink a big fat smoothie or milk shake? Suck it down wouldn’t that be ok? Oh,I hope he gets out for the 4th; he needs a few fireworks outside the hospital! Take it very easy with him if he does get out! Great news about the ANC and no fever!
Love to all “Mom”, “Grandma Sara”
July 2nd, 2009 at 3:45 pm
330! 330! 330! Love it! No fever! YAY! Hope you are all sprung from that joint soon and that Sam’s smile is as good as that new hearing! Love, Lisa
July 2nd, 2009 at 6:20 pm
Praying that he is feeling better soon!
love, ellen
http://www.caringbridge.org/ma/seanhanson
http://www.loneliesthour.org
July 2nd, 2009 at 7:32 pm
Here’s to your gut feeling , no fever ,& 330 ANC!!!! (also-PLEASE don’t worry about a note for me-you’ve expressed it plenty!!!)
July 2nd, 2009 at 8:42 pm
Margot,
330 WHAT A WONDERFUL NUMBER!!! Best news I have had all week. I will keep praying that your gut feeling is right so you can get out of the hospital!! Again I need to say that you are a wonderful Mom and that your whole family is amazing!!!
With Hope
Abra
July 3rd, 2009 at 12:35 am
Thataway Sammy! Smash those bad guy cells!
July 3rd, 2009 at 3:08 am
What a dedicated family you are. Hoping you are out bu the 4th! Call me if you need me to pick up dinner for you guys or any help( I am close so can always zip over if you need me too- 699-8403 or 272-3408) Madison is a little bummed that I brought the gift and she did not get to go. She is very concerned for her friend. Wishing you all sleep and peace of mind.
Angela (Madison’s Mom)