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Out but in clinic for blood today
By Margot | June 25, 2009
We got out of the hospital yesterday afternoon. Joe came and horsed around with Sam all day until we got out and they had a great time playing video games, seeing the miniature horses that were there and going to the play room. Thank you Joe and Colleen. We had a nice afternoon, dinner together and a walk around the block. As I was walking with Sam he said, “Mom, I really didn’t want to do chemo and hospital stuff over my summer.”    We hear ya buddy.   This morning he had an appointment for new hearing aids. He was pretty lathargic the whole appointment -admittedly it was very early but then just wanted to come home and go back to bed. He’s pale and I’m thinking needs a refill of red blood so we are on our way into the hospital for that today.  Temp has been hovering around 98/99 so as long as it doesn’t go higher we’ll stay out of the hospital.  His new hearing aids have transposing technology that transposes the higher frequency sounds that he can’t hear into the lower frequencies. As sleepy as he was I could tell it made a huge difference.  She tested him on all the words he missed when asked to repeat them on the last test and he got them all – even the “th” “s” and “sh” sound words he never got before.   And she whispered to him and he heard her! Crazy stuff.  Now we just need to cure cancer and all our problems will be solved.
Andy is at science camp again today. He said it’s the wrong kind of science camp. He was hoping for the kind with exploding potions and making stuff where “you pour one thing into another and then you drink it and become super fast and super strong.” Why I couldn’t find him that kind of science camp I don’t know.  Charlie man is doing well – funny happy little guy. Andy was telling me something last night and Charlie repeated every single word he said.Â
Margot
Topics: Progress Reports | 2 Comments »
June 25th, 2009 at 7:21 pm
Margot,
Thats wonderful that the new hearing aids are already making a difference. If you find that science camp that Andy’s talking about let me know….I have an 8yr old girl who would love to go :). Praying that you stay out of the hospital the refill does the trick and you can get some fun in the sun.
With Hope
Abra
July 3rd, 2009 at 1:52 am
hey guys always thinking of you. hope you are going well. those pictures of you are fantastic. love you all from your loving cousin in australia anneli maley
P.s
you guys are silly poo heads