« still fevery | Home | Back in the Hospital (Hopefully only for a night) »
Home
By Margot | June 22, 2009
We got home yesterday morning. Sam woke up feeling good and had been fever free for 24 hours. We were all together for Father’s Day yesterday which was great. Neil got home at 3am on Friday night.  We took it easy for most of the day yesterday and then went to the park yesterday afternoon because that’s what the boys wanted to do for Father’s Day. We met Tom and Anita and Zack and Trevor there and we all played a little baseball and tag had pizza. Sam hit baseballs and he and Andy even played a little football with some boys there before the Svajda’s got there, not for too long though.   Then Neil was it for tag with all the kids. My mom was horrified at me for letting him play and it was a little surreal to see Sam out there catching the ball and thinking that he just got out of a hospital bed that morning but it’s what puts a big smile on his face and we laid in the grass in the sun for a while to rest. After we got in the car Sam said to Neil “That was an awesome Father’s Day Dad” and gave him a high five. Neil said that was the best present he could’vehad.  He’s on the couch this morning but wants to go to Joe’s birthday party tonight. His mouthsores from the hand foot and mouth thing have pretty much cleared up and he’s eating a little. Our big job is to keep him hydrated and watch his counts so we don’t end up back in the hospital.
We have a blood check tomorrow and will do a blood draw to be sent to Philadelphia to test for an ALK gene. The current plan is to go back to New York for scans on or around July 6th and then make our way to Philadelphia if possible on that trip. Not sure what if anything we still qualify for in terms of antibodies so we’ll find out after we scan.  Thanks to everyone for your help and support last week. It’s great to be home and see Sam feeling pretty good today and yesterday.
Margot
Topics: Progress Reports | 8 Comments »
June 22nd, 2009 at 6:41 pm
Thanks for the very positive update. I know hospital chemo was not in your summer plans and it is pretty miserable to go back on the offensive and everything that means. I am glad you have the great attitude to squeeze the most out of every day.
Thinking very positive thoughts for you all, and happy belated birthday Margot.
June 22nd, 2009 at 7:08 pm
We’ll be in Phillie July 6,7,8 would be very cool to see you all in person!
Caryn
June 22nd, 2009 at 8:22 pm
A really great post and a really great father’s day and all of it lead by Sam’s amazing life force.
June 22nd, 2009 at 8:34 pm
So happy to hear of your awesome Father’s Day. I was thinking of you all yesterday and hoping that you we able to be together not stuck in the hospital. Tell Sam that Shelby’s soccer team actually placed first in the tournament that they went to this weekend she was very excited!! As always praying here in WA.
With Hope
Abra
June 22nd, 2009 at 9:10 pm
Yea!!!! So glad he is home where he belongs! Xoxo
June 22nd, 2009 at 9:48 pm
Please remember that Margate is only an hour away from Philly! I would love to come in and get to see you.
I am so glad Sam is home. I must have checked this web site every few hours all weekend hoping for an update.
–Sherry
June 23rd, 2009 at 3:08 pm
delighted to know that you are home and that you had an awesome father’s day together. Hang in there for the next round of good news. Jan
June 24th, 2009 at 3:50 am
Sam~
I am so happy that you are home. I hope that you have an amazing summer with your brothers.
:)Mrs. Heather