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Scans
By Margot | March 19, 2009
We have been so caught up in the revolving stomach flu, pink- eye, fevers, etc.  that scans this week snuck up on me. Sam was in the hospital on Monday and Tuesday nights due to a fever. He had good counts but they wanted to wait until his blood cultured since it was a 1am admit and he was still fevery on Tuesday.  He had a bone marrow biopsy on Tuesday while he was in-patient. It went as well as bone marrow biopsies go. He’s still a little sore. He was so good through everything and just asked for me to have a bakugan when he woke up. The in-patient nurses marveled at how well he took all his medicines, got accessed etc. Yesterday we had the CT and MIBG scan. On the MIBG, there were some suspicious spots on the spine and they asked us to come back this morning for a 48 hour view. Neil and I couldn’t see anything there today but we’ll see what the read is because we saw it yesterday too. There is also what looks to be a new spot, or maybe the same spot brighter, near the bladder area. Hard to tell if it’s bone or not. The arm and head looked clear and the legs looked somewhat improved. So, really not sure what to make of any of it, we’ll have to wait and see how they read it.   Meanwhile Sam was back in school today (after the follow up scan) and his normal goofy self. As much as it sucked being in the hospital, we had a lot of fun together and a lot of laughs believe it or not.  He has been in such a funny, goofy mood lately and it was nice to read next to him in the bed and make him laugh over his homework. We laugh a lot at Charlie. Sam almost cried laughing when we took Charlie down to eat at the hospital cafeteria and to my dismay and Sam’s amusement, he started spitting out his food all over the table saying it was yucky. He was probably right, the cafeteria food is sort of gross but his expression of disgust sure made Sam laugh. After they let us out yesterday and we got home and got settled, Dr. Kim called and asked us to come back to the hospital for another blood culture because some skin bacteria was growing in Tuesday’s night’s culture and she wasn’t sure if it was actually in his line or just a contaminent. So, we hauled everyone back to the hospital and got another blood draw and got home at 8pm very tired. Needless to say, I’ll be happy for Sam and the whole family to have a few days off from the hospital. We’ve seen way too much of that place lately.Â
My pink-eye from hell has finally resolved itself. The opthomoligist put me on a steriod cream which made my heart race and gave me crazy dreams. I couldn’t figure out what was wrong until I remembered him telling me to be careful becuase it was a very strong medicine. I was laughing at myself because I went to Andy’s awards ceremony (he got an award for being an inquiring mind) before going to the hospital yesterday morning with one bulging eye and my glasses on and one lens popped out of the glasses and I was jittery from the steroids and I think people were a little afraid. I’m just waiting for the telltale steroid taking dent in the forehead (we always could tell in college which iron pumping guys were on steroids by the dent in their forehead) to show up and the picture will be complete. I digress - trying to keep my mind off of the scans. The good thing about the scans is we will have a complete picture with a CT, bone marrow and MIBG so that’s a good thing I think.
 Andy is back to his old self and Charlie is good. Charlie has become a little demanding lately, i.e., ordering people around without the word please, As in “get me chocolate milk you dufus.”  Though it is funny, trying to nip it in the bud.Â
 Please pray, wish on dandelions, stars, and pennies and think positive thoughts that there are no new spinal spots. VMA/HVA is not back yet from this week. Last week was VMA 28 (stable) HVA 22 down. So, sort of a good sign.
Margot
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Topics: Progress Reports | 5 Comments »
March 19th, 2009 at 8:24 pm
Margot,
I am in Florida and will go out to the beach tonight and wish on a million stars for no new spots and a cure for Sam.
L,
Meryl
March 19th, 2009 at 10:28 pm
Margot,
Sorry to hear so much hospital time….and I agree with Charlie about hospital food and felt like spitting it out on the table many times. In fact Nate did that once or twice :). Shelby said that she will have her soccer team wish upon a few stars this evening. As always praying here in Washington.
With Hope
Abra
March 20th, 2009 at 1:45 am
Hi Margot, I had no idea the extent of your week when I saw you earlier. You always seem so strong and caring. It was good to see little Andy getting his award. He looked so proud. Hang in there. I will say a prayer for Sam as always! Angela (Madison’s Mom)
March 20th, 2009 at 4:45 am
Dear Marg,Neil,Sam,Charlie &”Mr Inquiring Mind”
Thank Gosh, Youall are out of the hospital!!! Margot your eye really scares me! I hope it is now better! Charlie is exactly two’n1/2 He is right on target; but you’re right “Nip” what is not acceptable “in the bud!” because it is not so funny to other people! Charlie is probably reacting to all the stress and missing his big brothers, who were both in the hospital!
I light a candle for Sam and all the NB kids at church every Sunday; this week especially for Erin; but I will pray and wish upon a 1000 stars that there are no new spots on the spine and even over the bladder! Sam is fighting so hard to get out from under the old spots! Sorry to have regaled you with my tooth problems; when you had such severe eye problems! Here’s hoping Sam does not catch a whiff of that eye virus or Pink eye or whatever!! He does not need anything more! I am so glad he is laughing; IT’s the best medicine!! Lots of Love, and give Mr.Andy a hug for me for his “Inquiring Mind Award!” Mom, “Grandma Sara”
March 20th, 2009 at 1:01 pm
praying….