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Going into Scan with Crappy Numbers
By Margot | January 8, 2009
Monday’s VMA: 42.4 HVA 44.7  Crap. Crap. Crap.  Sam is still feeling pretty well, though off and on has mentioned pain in a spot on the back of his head.   He’s also been a little sleepier than usual but then we are getting him ridiculously early for radiation so, factors, factors, how many factors  can I come up with?  Plenty of course but deep down Neil and I are bracing ourselves.
I forgot the SSKI drops that protect Sam’s thyroid and delayed us at the hospital for an extra hour for the injection. Loreen and Melissa were great about it and let Sam watch a movie in the empty scan room while we waited but  I was so flustered and mad at myself running down to the pharmacy to get the drops.  Argh. We are home now and Sam is working on his math test that he missed this afternoon.
He got an award on Wednesday at school for being an enthusiastic learner, he was so cute and proud up on the stage with his award. He’s been working so hard at school and vision therapy.  I’m so mad at this stupid disease as it keeps ripping the rug out from under him.
Margot
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Topics: Progress Reports | 10 Comments »
January 9th, 2009 at 1:57 am
Dec 17 numbers were early teens and now in the 40’s from the 20’s…what is different..radiation? What was treatment in November? Perseverating here and thinking good thoughts for Sam the Warrior. Tom and Abby.
January 9th, 2009 at 2:53 am
Saying a prayer for your wonderful little boy and his great family
January 9th, 2009 at 3:25 am
Thinking of you guys each day. You are so strong and so is Sam. Good Vibes to you all from VT.
Erika
January 9th, 2009 at 3:38 am
love you guys. Keep your shield up, your sword drawn and your armour on sam the warrior!! you can beat this too!
January 9th, 2009 at 3:52 am
Ugh… those dang SSKI drops…. I have done it at least three times…. always feel like a dog… yet, it seems that depending on the hospital, you may or may not need them prior to showing up for scans…. it just adds to the stress.
keep the faith… back to school always brings out sleepy heads… and pings and pangs… praying for Ms. Mable…. Stable or better nothing less!
January 9th, 2009 at 2:27 pm
praying for you all!
January 9th, 2009 at 3:46 pm
Thinking of you guys always. I can’t imagine what these numbers are doing to you guys.
January 9th, 2009 at 5:03 pm
We both miss seeing Sam’s happy and always smiling little face every day – we are sending good thoughts and prayers your way.
January 9th, 2009 at 5:32 pm
Praying for you, little buddy!
January 9th, 2009 at 11:11 pm
Thinking of all of you every day, especially this week !
Congrats to Sam on his special award !
Read something yesterday that talked about attitude…
how important it is !
You guys have AWESOME attitudes… Sam feels this and sees this !
XO, Kuhn’s