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Off for Some Fun in the Sun/Numbers

By Margot | April 10, 2008

Sam is looking and seems to be feeling as well as he has in a long time.  His ankles are getting much better, he has no pain at all and people keep telling us how great he looks.  The nurses when we walked in for the blood check yesterday said he looked fantastic.  He’s got a little bit of a head cold that is going around and we are all starting to come down with it.  He had a low grade fever for a few days that panicked us until I found out that Jake had one and Andrew had one and it seems to go with the head cold.   His ANC/Platelets/Red Blood Cells are that of a normal kids.  The VMA/HVA are trending higher.  Yesterday we got the results from last week. VMA 10 HVA 15.  These are both high and worrisome.  LDH was 769 also high.  That could be due to the head cold, or not.  So what do we do with this information aside from wake up in the middle of the night with a sick feeling and walk around feeling like the king size mattress that Pat talks about has just been rained on?   We are working on a plan.  We’d like to get yesterday’s VMA/HVA back (probably next week some time) just to be sure that things won’t bounce around.  The only way they’ve been bouncing lately is up.  We are setting up another scan for mid-May – 14th and 15th.

In the meantime, we are going to Palm Springs for a long weekend.  Thanks to Cathy and Nancy for hooking us up.  The kids are very excited and it should be good swimming weather. Monday is Sam’s Legoland fieldtrip and he’s been talking about it for weeks now.  I’m driving and Andy is coming along. 

Kate Sessions Elementary is going to do “Coins for a Cure” again this May and the money will go to MagicWater for research.  Mrs. Divicaris is awesome.  She’s going to make it very general so Sam doesn’t feel so spotlighted.  If you don’t know,  Sam is not a spotlight kind of guy and doesn’t like a lot of attention aimed in his direction.  He enthusiastically brought in all his coins last year though and I know he’ll love to be a part of things – just not the main part of things.  He’s loving school.  I picked him up early today for our vacation and I had to finish a bit of packing and he said, “Why didn’t you just leave me at school?”

More soon.

Margot

 

 

Topics: Progress Reports | 1 Comment »

One Response to “Off for Some Fun in the Sun/Numbers”

  1. Mrs. Heather Says:
    April 12th, 2008 at 12:19 am

    Oh Sam, you don’t know how happy you made me when you said goodbye to me yesterday. It was the first time in 3 YEARS! You made my day!

    I am so happy that you are having fun in Palm Springs. We are missed you at school and can’t wait to see you on Monday.

    Love, Mrs. Heather