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So…

By Margot | March 28, 2008

I’m very sorry to have left everyone hanging.  I was waiting to hear something official from the head of radioligy.  Dr. Willert had said she’d call him.  She’s out of town this week so we may not hear his read until next week.  Dr. Sholler read the scans and said she only saw the spot above the port and that it’s probably line related but we should go with San Diego’s read on it as they might have a clearer picture.  The San Diego read didn’t even mention that spot at all so I’m guessing the guy who read the scan thought it was line related.  In the SD report he mentioned uptake in both distal femurs at the same spot.  This could very well be growth plates because though it’s not out of the question that it would be in both legs at the same spot, it’s a little odd.  He also mentioned a spot on the arm that was only visible on the 48 hour scan and not the 24 hour scan – we didn’t see it and I’m not sure why it would show the second day and not the first. However, that did not stop me from wondering about it in the wee small hours of the morning.  Under reference scan it said “none” meaning he didn’t reference our previous MIBG scan (usually helpful) or the MRI we took of the growth plates last week. Anyway, Dr. Willert said the person who read the scan is not really a nuc. med guy (that’s a pretty good idea I think – to have someone who is not really a nuc med guy read our nuc. med scan)  and that she’ll call Dr. Harvey for clarification.  So, there we are.  We think we are in good shape but would like to hear that from Dr. Harvey himself.  We’ve started Sam on Vitamin CK3 this week.  Sorry for the sarcasm.  I promised myself I wouldn’t vent.

Sam and Andy and Charlie are all doing well.  Sammy is at school and Andy is on a play date.  Neil is in Atlanta today meeting with Dr. Durden and Dr. Sholler to talk about research.  I’ll do a more thorough update soon.  Please think good thoughts for our friends the Mikulaks today http://www.mikulak.blogspot.com

Margot 

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