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April 3, 2007
By Margot | April 3, 2007
Number update: Yesterday’s LDH: 567 (better) Last Week’s VMA 8.1 (very normal) HVA 10.6 (just above normal but we’ll take it) Weight 20.8 kilos (woohoo! That’s almost 46 pounds -more than Sam has ever weighed in his life) We are on day two of chemo and since it’s Spring break for Sam and Andy we’re going in early in the morning to do the infusion so we can do fun things in the afternoon. It’s only a half hour infusion but with yesterday’s blood check, doctor check and general waiting around we didn’t finish until 1pm. I thought today would be in and out since we were already accessed but there weren’t any beds when we got there and then they couldn’t find a syringe pump and so it was three hours. Jess promised tomorrow would go faster. All that grumbling aside, Sam is feeling good and is very chipper.We all went on a bike ride last night with Sam Andy and Dad on bikes and me on roller blades pushing Charlie in the jogging stroller. The boys had a ball and now that it’s lighter later hopefully we can do more of that when Neil gets home from work. He took Sam and Andy to Meet the Robinsons last night with Mimi so the boys had a full day. It almost made me think this week we are living the rosy picture Time Magazine painted in this week’s edition about living with cancer. They failed to mention of course any of the tougher pediatric cancers.
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The boys are downstairs now with Samantha and Taylor and Deb called and wants to meet us at the Wild Animal park this afternoon. Sam wants to see the new cheetah exhibit. They have a special safari thing there where you can watch the cheetahs run I was thinking of surprising him with it for his birthday this year. He worships cheetahs because they are the fastest animial on earth.
Soccer update: SAM SCORED A GOAL THIS WEEKEND!! Neil ran out on the field after he scored and gave him a huge hug. I missed it because Andy’s game was at the same time this week and I was accross the field. I was bummed but Neil took him out of the game so he could come over and tell me about it. What a smile! I got very teary.
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Charlie is climbing up the stairs these days and crawls right for the toilet paper so he can unroll it if anyone opens the bathroom door. Aren’t we a little early on that, Charlie?
Andy’s doing fine. He’s been doing “work” on my fax machine lately. He picks up the handset and says, “Hello? Oh Hi Colleen. Mmmm Hmmm. Mmmm Hmmm. Oh we’d love to. That would be wonderful. Ok Friday. Mnnn Hmmm. Ok. Goodbye Colleen.” It’s a spot on imitation of me on the phone. It’s very funny.
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In the background to all of this Penolpe is dying and breaking our hearts. It is hard to reconcile in my mind and heart Sam doing so well and enjoying that fact when several other children and their parents are living through horror. I can only say that we are thinking of them constantly and feeling generally helpless. I am in awe of beautiful selfless Penelope.
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We’ll do scans this month and hopefully hear from Texas Children’s on whether or not Sam’s vaccine has grown.
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Margot
Topics: Progress Reports | Comments Off on April 3, 2007
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