« January 19, 2007 (two year anniversary of Sam’s diagnosis) | Home | January 29, 2007 »
January 26, 2007
By Margot | January 26, 2007
We had some good news today. We sent the scans out and the head of radioligy at another institution (don’t want to start any radioligy wars here) would have called our scan clear or at least significantly improved. Hallelujah! We are so happy. This doesn’t change much in terms of treatment but it sure as heck helps Neil and I out mentally. We had already talked about a plan going forward that would include oral chemo and some pills that are showing a lot of promise. This will give Sammy a break and a better quality of life – a lot less hospitalization. It’s a reasonable thing to do at this point since there is minimal disease. We’ll just stay on top of the blood work and VMA/HVA so that nothing gets out of control. Sammy is at school today and almost made it all week. He stayed home Tuesday with some bad stomach problems from the Cytox. He got hit pretty hard the last round of chemo even though we only did three days. He was very nauseous and I’m sure he lost the hard earned half kilo we’d gained the week and a half earlier. Oral chemo should be a bit easier for him to take. He’s loving school and has been wearing his new sweatshirts that Grandma Joan brought him. I heard him yesterday as I dropped him off say to Joe, “Hey Joe, is that a new sweatshirt?” Joe said, “No, it’s my old one.” Then Sam said with a big smile, “Oh, because this is new.” It was funny.
Â
Tomorrow is Andy’s birthday party and we are very excited. I will write more later. I have to pickup Sam from school.
Margot
Topics: Progress Reports | Comments Off on January 26, 2007
Comments are closed.