Archive for August, 2006
« Previous EntriesAugust 30, 2006
Wednesday, August 30th, 2006Surgery went smoothly yesterday and Sammy popped up with a smile on his face this morning and was playing light sabers with his brother by 9am. I think the anticipation of getting it put in was harder on him. He cried the whole way to the hospital saying he didn’t want another line in his […]
August 29, 2006
Tuesday, August 29th, 2006Just said goodbye to Sammy and Neil on their way up to LA. Oof. It’s hard to let them go. Sammy’s bone marrow came back positive. 10% in the left hip ( I think left). Neil knew it was coming and the doctors all told us if it’s in the bone, usually it’s in the […]
August 26, 2006
Saturday, August 26th, 2006Sorry for the lack of update. Time flies when you have a newborn. Every time I think I have a minute to sit down and update the website, it turns out I really don’t have a minute. We had our meeting with Dr. Villablanca yesterday. She was great and generous with her time and her […]
August 26, 2006
Saturday, August 26th, 2006Sorry for the lack of update. Time flies when you have a newborn. Every time I think I have a minute to sit down and update the website, it turns out I really don’t have a minute. We had our meeting with Dr. Villablanca yesterday. She was great and generous with her time and her […]
August 20, 2006
Sunday, August 20th, 2006So now we take a deep breath and jump back into treatment. Dr. Maris thinks that the Fenretinide trial is still the best way to go. To qualify for the Fenretinide trial we need to do several scans – a CT chest/abdomen/pelvis,. an MRI or CT of brain, an Echocardiogram and ECG Bone marrow, with […]
August 18, 2006
Friday, August 18th, 2006The MRI report is back and it is bad. Very bad. The lesion has grown to 3.9 cm and there are several new tiny lesions that were not seen in the last scan. I am still shaking and it is all I can do not to cry in front of the kids as I feed […]
August 17, 2006
Thursday, August 17th, 2006I know that everyone has been waiting to hear the update today and I’m unsure what to write. I’m sure all of this information will change but I wanted to write things as I know them so as not to keep everyone in the dark. The spot is still there. It was more specific on […]
August 15, 2006
Tuesday, August 15th, 2006Charles Matthew Hutchison arrived on Friday, August 11 at 1:27 pm. He was 8lbs, 13oz at birth and 22 inches long. He looks so tiny to me but every nurse who came in to our room said, “Wow, he is a whopper.” or some equivalent of that. His delivery was very easy. They gave me […]
August 8, 2006
Tuesday, August 8th, 2006August 6, 2006
Sunday, August 6th, 2006The doctors think the HVA and VMA numbers are good news since the HVA is down so much and the VMA is still normal. I think they are all still concerned about the scans though. We are scheduled for a new MIBG, MRI and more blood work on the 16th and 17th of this month. […]
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