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December 18, 2005

By Neil | December 18, 2005

Yesterday was a beautiful day in my life. Sam has had more energy yesterday than I’ve seen since pre-dx. At times I’ve looked longingly at Sam’s little buddy Joey and how he has so much 5-year old energy & personality whereas Sam was tired for the last year. Yesterday, Sam was BACK and was vibrant and energetic and it was beautiful to see. Details below.

Sam has complained once (on Wednesday) of knee pain and today (Sunday) of back pain. He’s taking high-dose Accutane of which the side-effects are joint-pain & back-pain so hopefully we’re ok. We do have a meeting with our oncologist on Monday/Tuesday for blood work, x-ray, and MRI. The full set of scans is set for the week of 1/2. We’re praying and hoping that this is just the normal terror that parents of neuroblastoma kids endure.

Now back to some funny parent moments. Sam’s personality, as I mentioned, was in full-force yesterday and was a delight. As we lay down to sleep (and at this stage our bed is a commune with everyone in the family having their own spot), Sam started perusing my scalp with his eye for detail and noticed “an open spot” more commonly known as a “bald spot”. He couldn’t stop laughing that I had “an open spot” much to my chagrin. Andy? Well, he’s been fighting a vomit/diarrhea bug that has been hitting the pre-3-year old crowd. Watching Andy being sick has actually helped Sam since he told Andy all about “throwing up in the hospital” and how it’s “not too bad” and that Andy “will get better”. It was very sweet to see and, I think, in some sense therapeutic for Sam. Andy also had a bout of diarrhea and between both ends of his body; we have officially set new records for number of laundry loads for clothing and bed sheets. Once again, Sam really was helped by seeing Andy have a bout of bed diarrhea since Sam had the Sam thing going through transplant. It made Sam feel a bit better to see others enduring just a smidgen of what he endured. Well, thanks for reading and please pray for Sam that his scans are clean and that his various aches/pains are just that. Please pray for all cancer children; they’re beautiful, they fight like anything and they deserve better.

With best wishes,
Neil

 

 

Topics: Progress Reports | Comments Off on December 18, 2005

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