Progress Reports
« Previous EntriesRunning with the Help of Friends….
Thursday, March 18th, 2010Though it was hard, yesterday was a good day. It was a beautiful day and the service was lovely. Thank you to all who came, we were overwhelmed with the turnout and it was a testament to how many lives our little boy touched. Father Steven at St. Brigids was fantastic and his sermon was perfect. [...]
Services and Celebration (We are about living!)
Monday, March 15th, 2010Thank you James for the kind post about Sam as a goalie - it touched our hearts and is part of the subject of this post.
We will celebrate Sam’s life with a Mass and an All-Star Party: Sam’s All-Star Party.
The Mass and Reception will be at St. Brigid’s in Pacific Beach at 2pm Wednesday March 17th. [...]
Running
Saturday, March 13th, 2010At 4:10pm this afternoon, Samuel Thomas Hutchison became the fastest angel in heaven.
Surrounded by Love and Family
Friday, March 12th, 2010Earlier this week, Jake, a dear friend of Andy’s told him that “you were my tutor in Four Square. He then asked, “who was your tutor?”
Andy simply replied “Sam”.
Our family and extended family and friends are together on a beautiful sunny San Diego day to help Sam with his journey. Our hero will [...]
Lines
Thursday, March 11th, 2010Sam ’s got several different lines and every day I untangle the dilaudid drip from the saline or now the TPN and the oxygen line that somehow manages to sneak it’s way in there. Unfortunately after checking the pumps and pausing them for mirapenum and other infusions all day they are completely snarled again by the following day. It’s similar [...]
Bonescan Today
Friday, March 5th, 2010I am sitting in clinic watching a sleeping Sam waiting to go to Nucmed for a bonescan. We are doing a bonescan in preparation for a possible samarium infusion at UCSD. It’s a radiation treatment. Sam would be the second kid to try it from Rady’s, the first patient had great success although she wasn’t [...]
Doing ok!
Sunday, February 28th, 2010Quick update and we apologize for the lack of information. Sam completed radiation to the liver Wed and to the skull on Friday. Liver numbers are dropping. For the other NB parents, AST/ALT, Bili are basically normal - GGT is down by half but still elevated. It’s a good tumor marker [...]
Project Management
Saturday, February 20th, 2010Sam came home yesterday afternoon and as usual all of our moods brightened quite a bit. He is on a pain pump and fluids. It was kind of funny because he wanted to make what is becoming our traditional Toys R Us stop on the way home from the hospital and I was trying to [...]
Yesterday Sucked but today is better
Thursday, February 18th, 2010We are working on getting Sam discharged. He spent a couple of days in the ICU because his sodium levels were dropping and the only place to get highly salienated fluids is in the ICU. It made us really appreciate the Hem/Onc ward though we did have one rock star nurse who was great. Not our Sheila The [...]
Globetrotters and Valentines
Sunday, February 14th, 2010Sam almost made it to his Valentine’s Day party on Thursday but started feeling pretty cruddy about an hour before we were going to go. He wrote out all of his Valentine’s the night before. He loves to do that. I dropped them off to his class and picked up a huge bag stuffed for him and Ms. [...]
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