Comments on: Running on Empty http://teamsam.com/blog/2010/06/20/running-on-empty/ Just another WordPress weblog Sun, 20 May 2012 04:45:23 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Francesca Demers http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-37043 Francesca Demers Sun, 11 Jul 2010 11:21:21 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-37043 Hi Neil and family, I think of you all so much and just had a chance to sit and look over your last few entries as I was wondering how you are all doing. It is with tears in my eyes that I read this Father's day entry. I think that you are all doing a phenomenal job. I never had the chance to meet Sam but had the pleasure of meeting you Neil at the NB conference in Vermont last year right after Jack relapsed. I feel like we all get to now this awesome kid along with his awesome family a lil more by reading all of your great activities and memories about Sam. Thanks for keeping us all in the loop as there are so many families that we have in common that think the world of you all. Myself included. Jack just started the vaccine trial in March at Sloan, so far, so good. It is something that we have been hearing and learning about since the first time we went through treatment in 2004. I ofcourse continue to be petrified of what could potentially await us at any given moment but try and focus with what we have at hand. Relapsing after 5 years clean was certainly a blow and makes you already not trust something you couldn't trust anyway. The NB world as you know, has been a very sad place as of late as if it isn't always already. It seems even more so than usual with catastrophic grenades going off all around us to so many families that we love. I am happy that you are finding peace in your days. You are an absolutely beautiful family, thank you all for continuing to support the fight of this horrible disease. Sam's fight was certainly one of such valor as was his families. The pix that Margot posted of this summer so far are awesome. I know that Sam is looking down very proud of all of you and that he is with you in your heart every day. I can tell by all of his amazing pictures that this little boy knew so much love from his family. It would have been an honor to know him and meet him personally. I continue to wish you all well and please know that you are always in our thoughts and prayers. Love, Francesca Demers caringbridge/jackdemers PS, I just got a huge chuckle before as we just went to Lady Gaga the other night at Madison Square Garden!! I'm with you on Chicago and Elton John though....I think those are awesome concerts too!! Hi Neil and family,

I think of you all so much and just had a chance to sit and look over your last few entries as I was wondering how you are all doing. It is with tears in my eyes that I read this Father’s day entry. I think that you are all doing a phenomenal job. I never had the chance to meet Sam but had the pleasure of meeting you Neil at the NB conference in Vermont last year right after Jack relapsed. I feel like we all get to now this awesome kid along with his awesome family a lil more by reading all of your great activities and memories about Sam. Thanks for keeping us all in the loop as there are so many families that we have in common that think the world of you all. Myself included. Jack just started the vaccine trial in March at Sloan, so far, so good. It is something that we have been hearing and learning about since the first time we went through treatment in 2004. I ofcourse continue to be petrified of what could potentially await us at any given moment but try and focus with what we have at hand. Relapsing after 5 years clean was certainly a blow and makes you already not trust something you couldn’t trust anyway. The NB world as you know, has been a very sad place as of late as if it isn’t always already. It seems even more so than usual with catastrophic grenades going off all around us to so many families that we love. I am happy that you are finding peace in your days. You are an absolutely beautiful family, thank you all for continuing to support the fight of this horrible disease. Sam’s fight was certainly one of such valor as was his families. The pix that Margot posted of this summer so far are awesome. I know that Sam is looking down very proud of all of you and that he is with you in your heart every day. I can tell by all of his amazing pictures that this little boy knew so much love from his family. It would have been an honor to know him and meet him personally. I continue to wish you all well and please know that you are always in our thoughts and prayers.

Love, Francesca Demers

caringbridge/jackdemers

PS, I just got a huge chuckle before as we just went to Lady Gaga the other night at Madison Square Garden!! I’m with you on Chicago and Elton John though….I think those are awesome concerts too!!

]]> By: Rose http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36918 Rose Fri, 02 Jul 2010 02:42:50 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36918 Because of Sam....http://www.healthcanal.com/drugs-approvals-trials/8981-Sholler-Studies-Old-Drug-for-Neuroblastoma-Treatment.html Because of Sam….http://www.healthcanal.com/drugs-approvals-trials/8981-Sholler-Studies-Old-Drug-for-Neuroblastoma-Treatment.html

]]> By: Kelly Ratliff http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36811 Kelly Ratliff Thu, 01 Jul 2010 03:39:25 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36811 Margot and Neil, I think of your Sam often. You are in my prayers. I hope you can feel the peace that our Father in Heaven can give. I know Sam's little spirit will always be with you and you will be with him again. Kelly Ratliff DJ's mom Margot and Neil,
I think of your Sam often. You are in my prayers. I hope you can feel the peace that our Father in Heaven can give. I know Sam’s little spirit will always be with you and you will be with him again.
Kelly Ratliff
DJ’s mom

]]> By: Angela Rowe http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36382 Angela Rowe Sat, 26 Jun 2010 21:15:58 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36382 Thinking of you guys today while sit in a hotel in texas... Angela (Madison's Mom) Thinking of you guys today while sit in a hotel in texas… Angela (Madison’s Mom)

]]> By: Malea http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36343 Malea Fri, 25 Jun 2010 18:19:59 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36343 It always helps me to write my thoughts out, hopefully it is the same for you. Your family is always in my thoughts! Missing Charlie and his classmates already! Take care, Malea It always helps me to write my thoughts out, hopefully it is the same for you. Your family is always in my thoughts! Missing Charlie and his classmates already!
Take care, Malea

]]> By: lisa sturt http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36342 lisa sturt Fri, 25 Jun 2010 15:29:56 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36342 I don't think anyone can say anything more powerful than what your brother did. Know that our thoughts and prayers are with you & Sam will NEVER be forgotten. I don’t think anyone can say anything more powerful than what your brother did. Know that our thoughts and prayers are with you & Sam will NEVER be forgotten.

]]> By: Pam Hutchison Lafferty http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36331 Pam Hutchison Lafferty Wed, 23 Jun 2010 16:51:31 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36331 Neil, The same strength that made you a fearless crusader for Sam will see you through this, I'm sure. I ache for you and can't imagine your pain. I hope you can feel the love and support coming to you from all angles and pray that you will find small moments of peace as you work your way through this. You're not alone. Sam is not alone. With love, Pam Neil,
The same strength that made you a fearless crusader for Sam will see you through this, I’m sure. I ache for you and can’t imagine your pain. I hope you can feel the love and support coming to you from all angles and pray that you will find small moments of peace as you work your way through this. You’re not alone. Sam is not alone.

With love,
Pam

]]> By: Michelle http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36330 Michelle Wed, 23 Jun 2010 07:29:04 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36330 Somebody much wiser than me once said "its easy to leave than be left behind" please read "The Shack" William P Young. I have followed your story since forever first from the UK and now from Australia. You are an amazing Family with your very own Angel in Heaven. Michelle Somebody much wiser than me once said “its easy to leave than be left behind” please read “The Shack” William P Young. I have followed your story since forever first from the UK and now from Australia. You are an amazing Family with your very own Angel in Heaven.
Michelle

]]> By: Lisa Riniolo http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36329 Lisa Riniolo Wed, 23 Jun 2010 00:29:59 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36329 Neil, It is good to hear some of my thoughts written down. It is hard for me to get things put together..everything is still a jumble...in my mind and my heart. It gives me comfort to read your words and hear that many of our thoughts and questions are the same. Maybe I'm not loosing my mind... Much love Lisa Neil, It is good to hear some of my thoughts written down. It is hard for me to get things put together..everything is still a jumble…in my mind and my heart. It gives me comfort to read your words and hear that many of our thoughts and questions are the same. Maybe I’m not loosing my mind…

Much love
Lisa

]]> By: meryl http://teamsam.com/blog/2010/06/20/running-on-empty/comment-page-1/#comment-36326 meryl Tue, 22 Jun 2010 22:03:04 +0000 http://teamsam.com/blog/2010/06/21/running-on-empty/#comment-36326 Neil, You were the best father a beautiful boy like Sam could ever have. L, Meryl Neil,

You were the best father a beautiful boy like Sam could ever have.

L,

Meryl

]]>