Comments on: Pain Seems to be a Little Better

By: Colleen Kuhn

Colleen Kuhn — Fri, 08 Jan 2010 21:26:52 +0000

No great words of wisdom here… most of the above have already said it so well!
We all believe in You and Neil… and we believe in Sam!
Continued prayers and love,
Colleen

By: Lisa Riniolo

Lisa Riniolo — Fri, 08 Jan 2010 17:02:52 +0000

Just checking in. Thinking of you all and praying for Sam everyday.

With Hope Lisa

By: Scott K

Scott K — Fri, 08 Jan 2010 16:53:25 +0000

M & N,

I know the robot well. It’s like having a split personality. Make sure to scream once in a while (preferably into a pillow or the Grand Canyon)

Let’s hope that the Nitisinone adds some magic. Anxious to hear how it works. Non-toxic – yeah!

Scott K

By: Rebecca Storch

Rebecca Storch — Fri, 08 Jan 2010 14:52:23 +0000

LOVE Toms post… I agree!

By: Lisa Bonebrake

Lisa Bonebrake — Fri, 08 Jan 2010 03:44:40 +0000

You manage all the planets in your solar system incredibly well….all orbiting each other simultaneously. Impressive work on Neil’s part getting the new drug for NB, and on Sam’s part in lowering his own temperature – I believe they both often live on Planet Obstacle Crusher. And you, my dear Margot, could never be a robot…prayers and wishes for efficacy of the new drug, and pain-free planets…Lisa

By: Angela Rowe

Angela Rowe — Fri, 08 Jan 2010 03:28:00 +0000

I am so sorry that you have to be in Planet cancer then plqanet normal. I often wonder about how you do it. On another note- on Monday at the assembly during the pledge of allegiance- I heard a kid saying it really loud and turned to see who the patrotic kid was and it was Andy- so cute! Angela (Madison’s Mom)

By: tom hutch

tom hutch — Fri, 08 Jan 2010 03:19:13 +0000

Sam is going to live.

Sam reminds me of Winston Churchhill, who after the nighttime bombing of London and Hitler’s declaration to take England, went to the beach and at water’s edge, facing Germany across the Straight, said” We will fight you on the beach, we will fight you in the streets, we will fight with our bare hands. We will never give up”

Sam didnt give up last night, he fought to not go to the hospital…he said, screw it, I am going to lower my body temperature all by myself.

He will never give up. Neil will never give up. Margot, as Sam’s spiritual leader you must go to the beach and tell Sam like Churchhill told the millions of scared Englishmen, that all of you will never give up.

Fight. When you get knocked down, come up swinging, like Sam did last night.

Fight.

By: Rebecca Storch

Rebecca Storch — Thu, 07 Jan 2010 20:38:28 +0000

I love you guys!

By: Carrie Palmer

Carrie Palmer — Thu, 07 Jan 2010 20:30:57 +0000

Thinking of you all the time. Way to go Neil on getting the nitisinone. Hang in there and hoping for lots of tumor kill.