By Margot | July 2, 2009
Sam woke up with a painful red rash all over his body yesterday. We thought it might be a drug reaction to Vanco but most of the doctors that looked at it – we had in infectious diseases, dermatology and the oncologist on the floor look at it- didn’t think it looked like a drug reaction. It looked like the reaction he had to cephapine to me but what do I know. We convinced them to take him off the Vanco and put him on something else anyway. Dermatology wants to biopsy it today to make sure it is not fungal and dangerous. The oncologist yesterday said even though the line didn’t culture yesterday since Sam is still having fevers, she’s not convinced it’s not a blood/line infection and wanted to keep him on the Vanco- (we switched him off of it). That is very different from what the oncologist had told me the day before. The oncologist from two days ago was pretty convinced it wasn’t line related since we’d had negative cultures all week if yesterdays were to come back negative which it did. Sam finally got up to do his own time in the playroom with Angela after I’ve been nagging him about it all week but he couldn’t hold the air hockey thing because his hand hurt from the rash and he just looked so strained that I felt terrible. When I went back in he was smiling playing Clue Jr. with Angela but it was a pretty quick playroom time. Neil stayed last night. I left with Andy and Charlie around 9:15 and he already seemed to be feeling a little better, we played sports hangman that Madison’s mom brought – Thanks Angela!- and the boys loved it. Maybe I was just hoping he was feeling better. I’m hoping to go in early this morning and find the rash fading so he doesn’t have to do the biopsy and he can maybe go home some time this weekend. I’m hoping his ANC is up and he can start fighting whatever this is. They wanted to biopsy yesterday with a local but Sam wasn’t having any of that so he’ll need to be NPO today (which is a laugh because he hasn’t eaten anything much anyway). He is still running fevers 102 yesterday and he is pretty miserable. He managed a few jokes though and when Neil called and I told him Sam was pretty miserable thinking he couldn’t hear me and he yelled out, “I’m not miserable right now!” His new hearing aids sure do work well. I keep thinking with all of this where the heck would we have been if he had gotten the whole dose of chemo? He got a lot of chemo.
Anyway, I’ll try not to leave everyone hanging and post later today.
Andy has been hanging with the Brunettes the past couple of days and Monday he hung out with Beau all day. He and Luke have done a tennis clinic together and then Meredith took them to the beach yesterday. Today he has Luke’s birthday party. Thanks Meredith, Lisa, Pam and Monica for giving him some fun. Jett is finally better so Charlie is having a playdate with him today. He is so excited. I bought Thank you notes in the hospital gift shop yesterday and then started laughing to myself because I don’t even know where to start with all of the people we owe Thank You’s to.
Please think good thoughts for our little boy today. I want the smile back on his face and he wants OUT.
Breaking News: Neil just called – no fevers all night and ANC 330 Wahoo! Sam’s still sound asleep so no news on the rash but I’m thinking it’s going to look better now that we are off the Vanco. Here’s to gut feelings. Hope we’re right.