Comments on: Generally Miserable

By: Bev Browning

Bev Browning — Tue, 30 Jun 2009 06:20:44 +0000

Hi, tell Sammy he’s my hero. I think of him and pray for him daily. A smile goes a mile–take care of yourself too! Love, Bev

By: Nicole Moraw

Nicole Moraw — Mon, 29 Jun 2009 16:23:07 +0000

I wish I had some books to suggest, but we are only reading toddler books here.
But we are thinking of you and praying for no fevers and that you can get out of the hospital!

By: rebecca storch

rebecca storch — Mon, 29 Jun 2009 14:44:02 +0000

Hoping that you are sprung from that joint soon! May the rest of the summer be spent at home where you belong. BTW, Were ready for friday mornings at the park – whenever you guys are. Maybe Colleen can walk the boys over too. That would be fun!

By: Angela Rowe

Angela Rowe — Mon, 29 Jun 2009 13:33:04 +0000

Sotty this is not fair! Thinking of you and wishing for Sam to feel better soon! Angela (Madison’s Mom)

By: Marty jr

Marty jr — Mon, 29 Jun 2009 10:08:00 +0000

Thinking of you all.
Tell Sam that Marty said Matilda is a great book,
Love you

By: Gail Perry

Gail Perry — Mon, 29 Jun 2009 05:10:48 +0000

Hi Margot! You might give Daniel Pinkwater’s books a try. They always made my kids laugh out loud – both children and adults can appreciate them on different levels. I haven’t read them all, but haven’t found a bad one yet, so whatever the library has is worth trying.

Gail

By: Sandi Queen

Sandi Queen — Mon, 29 Jun 2009 05:01:56 +0000

Praying for Sam, and for all of you!

Have you tried coconut water (in the produce section of the supermarket)? It is very high in nutrition, often used as an electrolyte replacement by athletes. Historically, it was used to transfuse soldiers during war times, as it was so close in amino acids and electrolytes as human blood. Also naturally reduces fever, eases the stomach also. It was very helpful for my little boy during hard chemo days, as well as fevers. A natural antifungal also. Can’t hurt, so I thought I’d mention it.

Has he read the “Encyclopedia Brown” books? My boys have all loved them.

By: Julie MacDonald

Julie MacDonald — Mon, 29 Jun 2009 04:11:55 +0000

Hey Margot…. I’ve been keeping up to date on Sam thru your blog but wanted you to know that Sam and your whole family are in our thoughts and prayers. It’s been a while since we’ve seen you but I think of you often and also think you are an amazing mom and woman. Your family is super lucky to have you. Best wishes to Sam and all of you……
Julie MacDonald

By: tom hutch

tom hutch — Mon, 29 Jun 2009 02:24:58 +0000

Hang on to the LDH as a good sign…

Focus on the positive..

Thinking and feeling for you.

By: caryn franca

caryn franca — Mon, 29 Jun 2009 01:27:14 +0000

Man oh Man I know the feeling of misery… NOW imagine Nick chugging Avemar during that scene… It didn’t happen, couldn’t do it after Cyclo/topo/vincrstine. We kept a hefty dose of iv ativan going and we did a pre med of zophran BEFORE his antibiotic drips, that helped the nausea. It just plain sucks… I am rooting for counts to rise and fevers to fall and tumor markers to continue to fall…. OUr nerves are starting up for CHOP next week, I know you’ll be interested in our results. Gavin Lindberg is getting two very different treatment suggestions from Sloan and CHOP after Evan’s new relapse… I hope we have agreement on plan and it is an easily managed one… you’ll be right behind I know… ps platelets 60 after transfusion isn’t so bad is it?????