By Margot | August 24, 2007
We are in Houston at Texas Children’s Hospital. Sam is about to be infused with his CD45 anitbody. It’s a seven to eighthour infusion for four days. He’s been triple medicated (tylenol, benadryll, and steroids)to protect against an allergic-type reaction and he’ll get benadryll every four hours druing the infusions. They expect him to spike fevers during the CD45 infusions but aside from that, they are not expecting any side effects. I’m writing this update from in Sam’s hospital room. Free WiFi in every room, man will we be spoiled when we go home. Sam and Andy are playing on the Playstation and dad and Charlie are out getting some games and books for us.
So far everything is going very smoothly. The kids were great on the flight out here. We are staying with the Hannons who are fantastichosts and very good sports to let Hurricane Hutchison land at their home. They took us to a beautiful park last night where the boys ran around and got out all the pent up energy from sitting on the plane all day. Andy is riding in the wheelchair every time we go for an X-ray or test making people very confused as to who the patient is. The novelty on the wheelchair has long since worn off for Sam but Andy likes it.
Houston is hot and sticky. Neil is an anomaly of a human being in that he loves the heat and humidity. Everyone here looks at him like he’s crazy when he enthusiastically tells them how much he loves the weather here.I’m going to unplug the kids now and make some foam animals we brought to pass the time. Sam is not so keen on staying overnight. I think the worst side effect will be boredom but with all the benadryll, he’ll be sleeping quite a bit. It sucks to be in-patient. There is an added fun factor now that Charlie is such a busy guy. He is going with the flow as usual but makes it very clear when there is something he feels he needs to do. He’s talking up a storm but only he knows what he is saying most of the time.